16 month old with noonan syndrome

Samantha - posted on 07/13/2011 ( 4 moms have responded )

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my daughter was recently diagnosed with noonan syndrome. I am awaiting the blood work to confirm it, but it would certainly explain a lot. She has pulmonary valve stenosis and is very small (17 lbs at 16 months old) and has no teeth yet. Question is, when did you little ones with noonan get their first tooth? Thanks in advance.

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Gina - posted on 05/01/2014

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Hello

My daughter is almost 17 months and has noonan Syndrome she has all her teeth but doesn't walk yet.I'm so concern and trouble. Don't know what to do to help her. I hope she will worked soon. Please for those of you who had the same problem ..... can you please help me to accept that situation...thank

Jolene - posted on 05/01/2014

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My daughter was diagnosed at 10mo - she has been diagnosed with pulmonary valve stenosis - we go to the doctor a lot. she doesn't gain weight that well she only weighs 14 pounds. She doesn't have teeth yet and has just began hand and knee crawling - my daughter prefers the army crawl she gets around a lot faster.
I'm very proud of my daughter.
What bothers me the most about my situation is when we went to see a cardiologist the md said to me "When looking at you and your husband - I would say you mom passed on to her" I've really never been able to get over that. I've blamed myself a lot that I did this to her. I will be getting tested in a month or so to confirm it. Our genetic specialist shared with us that this can happen to anyone you do not have to have this genetic disorder to pass it on - this can happen sporadic
I've been looking for websites and very shy of our situation, this is very personal and I don't want people to judge and make fun of her.

Fadia - posted on 06/08/2013

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My son was diagnosed with the syndrome as well. He is 9 months and has two bottom teeth since 7 months, do not worry your little one will get her teeth soon, every child is different.

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