18yr old son with episadious

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Rebecca - posted on 10/03/2015

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My 18yr old son has episadious, we live in Australia and have just been told that there isn't any doctors here that are willing to give him the cosmetic surgery that he needs and wants for him to feel "normal". He has had over 8 operations including bladder neck reconstruction, the removal of a uritha (he was born with 2) one of his kidneys has dramatically reduced in size because of childhood infections that were undetected
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I would love to hear from other mums that have dealt with same or something similar or some good stories on their children being completely fixed and how they went about achieving this for their kids.

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