Tonya - posted on 11/18/2013 ( no moms have responded yet )
Hello My son had to get an ostomy 4 days after being born at 30 weeks. He has been doing great and pretty much has been on feeds for about 6 weeks. They have been feeding the stool back in through his stoma to keep the bowel alive. Oh I should probably mention that when they caught the hole in his intestine they caught it within minutes and did not have to remove anything at all. Than a couple days ago (2 days before they were going to close his ostomy up) he started getting sick and they figured out he has NEC.They put him on antibiotics right away and stopped feeds. After a couple days he is feeling a lot better. I was wondering if any moms was going through or went through something similar. Im so afraid to even take him home because while he was sick he stopped breathing, and im afraid that will happen again. Im also afraid that this will keep happening. They are thinking about closing him up very soon. I don't know I would just lose to hear any stories similar please and thank you moms!