User - posted on 04/10/2012 ( 2 moms have responded )
Last year my then 2 year old baby boy began suffering from seizures. During the testing phase the doctors discovered a large arachnoid cyst near the cerebellum. We were told by several neurologists, neurosurgeons, and specialists that it was very large, but of no concern. Most dismissed it and sent us on our way. We were lucky to find one caring and compassionate pediatric neurosurgeon (Dr. Gary Tye) who continued to monitor the cyst. Over the course of the year it has continually grown and is now a concern. It is putting pressure on the brain stem now, and although he is still asymptomatic (Dr. says the seizures are not related) it is only a matter of time before it will adversely affect him. We are scheduled for a surgery on May 23rd. We must decide between a shunt or a craniotomy. Dr. opts for the craniotomy, as do my husband and I. While I understand that route is more intrusive and risky than the shunt, we aren't thrilled with the results of the shunt research we have done. Does anyone have any experience with either of these? I am terrified and in desperate need of any kind of advice, success stories, or anything from anyone who has been through this? Thank you in advance...