7 year old with Scoliosis

Abigail - posted on 10/05/2014 ( 3 moms have responded )

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My baby girl is turning 7 next week and she was diagnosed with mild idiopathic scolioisis. She has a 14 degree curve and the doctors at Stanford is proceeding with the "wait and see" approach. I knowt that there are far worse things out there, but I am devastated and afraid. I feel helpless. I have been scouring the web for answers because I don't feel comfortable with waiting. I've read that because she is so young, she has a pretty good chance of her curve progressing. I'm a also a mess regarding all the xrays she will have to take. I feel alone and I would greatly appreciate any advice or information from other moms. Thanks

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Sarah - posted on 10/05/2014

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If you are not comfortable with waiting, go back to your doctor or get a second opinion. I do think at 7 there isn't much intervention to be done just yet because she does have so much growing left to do. So if you do have to wait and see, make sure you get all of your questions answered and you know exactly what the long term and short term plans are for your daughter. If she needs a few x rays every three months for the next 8-10 years, it may seem like a huge amount to you right now. I assume you worry about the radiation? Today's machines are much more efficient and expose much lower amounts of radiation. Still, make sure they cover her ovaries with a lead apron every single time. That should be protocol anyway. You may be surprised that she won't need nearly the amount that you anticipate. My daughter, 10 yo, just had a physical and one of her legs is suddenly longer than the other. This throws her hips off and her shoulders off too. I also, frustrated with wait and see and I really pushed and there is no option right now but to watch her. If she was past puberty it would be different. Which it the case with your baby girl too, right? Just remember to make your follow up visits. It is a tough lesson in patience for me. Good Luck!

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Sarah - posted on 10/06/2014

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I am a fixer as well, so I do apprectiate the information about the Schroth, I will check it out.
The only thought the doctor has about my daughter is she had a very rapid growth spurt, almost 3 inches in 6 months, and she thinks that her legs will even out. However, we must go back every three months to be certain. If the difference increases then they will adjust with a shoe insert.
I agree that shielding the pelvis may obscure some of her organs. However, if they are doing a series of x-rays (like standing, laying, front and side) ask them to cover her in all but just the one if possible. Yes, she is getting a tiny dose, far less than she would have even 5 years ago, but protecting her reproductive parts won't hurt.
It is ok to be sad and hurting for her. Of course there are worse things out there and sometimes people are quick to tell you to be thankful for what you have. I am sure you are grateful that overall your daughter is in good health when so many kids are not so fortunate, but you are human too.

Abigail - posted on 10/05/2014

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Thanks Sarah. I do worry about the xrays. They didn't cover her ovaries when they did the xray because they said they needed to see her organs as well to check if they are all in place. I guess with scoliosis, sometimes it can cause some abnormal pressure to the lungs. Thankfully everything seemed to be in place except for her mild curve. Also, the machine they used was called an EOS machine. They said that it emits only a fifth of the radiation compared to other xray machines. I guess what I worry about is that we have to do this all the time. My baby already has food allergies and asthma. Today she asked why she had these things and not any of her other classmates. I tried to give her some perspective. I know that there can be far worse things out there, but it breaks my heart.

I hope everything works out with your daughter as well. This wait and see approach is killing me. I'm a fixer! I feel helpless. I was wondering if they determined what caused your daughter's leg to be uneven. My mom has a slight case of scoliosis and she has uneven legs too.

I also came across this physical therapy method called Schroth. It's designed for people with scoliosis. It consists of exercises to help with the imbalance involved with scoliosis. Although there is no guarantee, some people are able to achieve curve correction. Perhaps your daughter can benefit from this as well?

Thanks for your reply Sarah!

Abby

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