Any moms have a baby with craniosynostosis??

Erica - posted on 08/27/2015 ( 1 mom has responded )

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My 3 month old child has always had a ridge on top of his head. Our pediatrician recommended we go see a neurologist in Atlanta Georgia. They did some ct scans on his head and it turns out he has sagittal synostosis. I believe We will have to have open surgery. We have an appointment October 6th to talk about options. I am a wreck ever since I found out. I cant focus on anything but my poor baby having surgery. Has anyone else been through this?? Any help would be much appreciated.
Sincerely, one nervous mama

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