Any moms out there with a child with strabismus?

Angèle - posted on 12/17/2008 ( 12 moms have responded )

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I have a 3 yo and she is nearsighted (+5.75; +6.25) and has strabismus in her left eye. She has been wearing glasses for almost 2 years now and we have a follow up check next week. I think we are now looking into patching. Any other moms out there with this experience?

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Sarah - posted on 01/21/2009

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My daughter patched for 2 hours a day from 9 mo. till she was 3 yrs old then we switched to glasses, which kept her strabismus corrected. The patching did help save her binocular vision.



We have been to 4 different pediatric ophthomologists (due to us job transferring around the country). While we were in New Mexico, I traveled 3 hours to one guy who treated me like an idiot, seemed to discount anything our previous doctor (whom I trusted) had done, and didn't connect with my child. So we switched to one 4 hours away. Although it was a long drive and an overnight stay every 6 months it was worth it to find a doctor that trusted me as a mom and I trusted his judgement as a doctor. Do what your gut says and find someone you can connect with, answer your questions and work with your child.



Good luck!

Mary Jo - posted on 12/17/2008

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My son started with glasses and patching at nine months. Initially we patched full-time and probably spent his college money on patches since he tore them off at every opportunity. He is now 6 and patches two hours a day for maintenance and he no longer needs glasses. When you start patching, you'll be amazed at how many people will tell you that they or their child had to wear a patch for awhile. Most people I know did it for no more than a year - my son's extended patching is not the norm.

One more thing, we switched doctors a few years ago - because his first doctor was two hours away. The two doctors have different approaches - both got results, but I am more confident with our current doctor. Never be afraid to get a second opinion if improvement levels off.

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Tanya - posted on 08/18/2012

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Hello, my name is Tanya, and my 2 1/2 year old's eye has appeared turned in since he was about 6 months old. We took him at 13 months to a specialist and optomologist. We were told by both doctors that he has pseudostrabismus which is the false appearance of the eye turning in, due to a layer of skin that covers the bridge of his nose. After the visit, it seemed to go away for over a year! Now, we are noticing it again, and have made another appointment, but it is not for four months! I am so scared that the eye turning in is something terrible. I have enjoyed hearing stories of how your child's vision has been corrected. I hope I will get a good diagnosis that can be corrected :)

Yulietsy - posted on 06/28/2011

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Kim I read your comment and it gave me lots of hopes for my little girl. Her case is the same as yours, but we just got started with all these.

Angèle - posted on 01/21/2009

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Thanks everyone! We had an appt and well her vision is still the same, which is good, since last time we had to up her prescription.  He didnt suggest patching, he just said for her to continue wearing her glasses and that we just have to accept that this is how shes going to be. Who says that to parents? Its not that we dont accept her, we just want the proper care for her! Argh.. Anyways, we are going to be going back to our original opthamologist whom refered us to the specialist in the first place; now that she is older and used to people looking into her eyes Im sure he will be able to assess her again.  We trust his opinion and he actually listens to us parents!



Thanks again ladies :)

Justkima - posted on 01/21/2009

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Hi Angele! Yes, my daughter has Strabismus. She was diagnosed at 4 and we started first with glasses as her vision between her two eyes was quite different. We were able to get that closer together. We patched for about 18 months and she just now had corrective surgery for the alignment this past December. It went very smoothly and was a great success. In fact, I just posted a picture on my blog showing Two weeks post-surgery. http://justkima.blogspot.com



I have heard good things about vision therapy, but never checked into it.



Good luck and feel free to ask me more questions if you have them.



~Kim

http://www.mygc.com/kimniehaus

User - posted on 01/21/2009

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Our middle son had strabismus. We patched for about 18 months as his vision was otherwise excellent but then had to undergo corrective surgery. The surgery was successful and he's now a healthy, happy 9 year old. We continue to monitor his progress every six months but so far, so good.

Maria - posted on 01/21/2009

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Angele, I had it as a child and had surgery when I was 4, almost 40 years ago. I had to have another surgery 18 years after that one to correct them from going out. I still have a problem with my eyes not being straight, but I had it in both. I have very few problems with depth perception, although I don't have it, I drive and don't walk into things or off of curbs. Just find another opthalmologist in your town and ask for a 2nd opinion, especially if you don't like him. I even did that for my daughter's braces.

Angèle - posted on 12/20/2008

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Thanks everyone. We were contemplating asking for second opinion..feels weird asking a doctor in a top hospital to refer us to someone else..but we havent been happy with his treatment or bedside manner, or lack there of.. I will post again after her appointment. Thank you again :)

[deleted account]

Our daughter had strabismus, but her vision is OK, so a different cause...she saw a pediatric neuro-opthamologist and he had us patch her 30 min per day for each eye -- basically to make sure her brain could use each eye and wasn't relying solely on 1. She had surgery in May (at 23 months of age) to re-align her eyes -- it was an outpatient procedure, but w/general anesthesia. Her eye looked terrible for weeks and were sensitive to sunlight, but it worked -- her alignment is great. Again, this may be different, given that my daughter's problem wasn't caused by overcorrecting to see better, but our doctor told us that just patching wouldn't fix her problem, it had to be corrected with surgery, and that the earlier we did it, the better her chances of learning to use her eyes together. Hope thi shelps.

[deleted account]

I had a visual convergence problem and my son does as well. In fact, I'm taking him in for his vision therapy evaluation today.



Vision therapy has been tremendous for me in so many ways. I no longer fear merging traffic, I can catch a ball and thread a needle, and I no longer have panic attacks during one-on-one in-person conversations.



My five-year-old nephew also had vision therapy. He was a preemie and the doctors said he would never see 20/20, even with glasses. After vision therapy, he now sees 20/20 with glasses.



Apparently, a lot of opthamologists think vision therapy is a lot of hooha, just a way for people to take your money. But if you have an experienced vision therapist, it is truly effective, and there are many studies to support it.



When I was in junior high, the principal at my school suggested that my mom take me to this very same doctor for vision therapy, but the opthamologist said it wasn't necessary. So, 20 years later, I had to go to vision therapy...



I would absolutely recommend this before trying a full-time patch.

Suzie - posted on 12/17/2008

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My son does not have it, but I had it a a child... and still have it (my left eye as well)



My parents tried the patch on my right eye, but at the time they were not told that it had to be worn 24/7... so my eye was never corrected properly. I remember wearing a patch when I was 3-4 years old, so it could be the time to start. The only thing is that I remember my mother telling me that my father used to take it off because I was running into walls and he didn't like it... but I should of had it on all the time. I am sure that now (25-30 years later...) ophthalmologists are going to be a little more aware of the problem and solution.



I started wearing glasses at 20 months (1980) and now don't have full vision from my left eye (peripheral only) and am -0.75 for the right one...

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