Any one dealing with Gastro.

Andrea - posted on 02/05/2014 ( 1 mom has responded )

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Have any moms found out or had a baby with Gastroschisis???? I would really like to talk with moms who have had or will be having a Gastroschisis baby... I am looking to help a families dealing with it or talk to families who have dealt with it..

Gastroschisis- is a birth defect where the belly does not close, so the intestines and other organs come out of a hole next to the umbilical cord..

My daughter was born 4 almost 5 years ago with Gastroschisis at 36 weeks 3lbs 8oz 16 1/4 in long with a 6 week stay in the nicu. They took her in for surgery at 8 days old they were able to get every thing back in but had to let it heal on it's own.. She hasn't had any major issues since coming home Mother's day weekend.. She has some potty issues, can't have chocolate makes her sick and can only handle a little bit of regular milk at a time. She has just started really taking a notice that her belly is a different then her friends and family. But I always reassure her that her belly is normal and that our bellies are the funny ones..
My Daughter Jaya was born at 36 weeks she was 3lbs 8oz and 16in. With a birth defect called Gastroschisis.. ( her large, small intestines, bladder, stomach, ovaries, and gallbladder were all out side her belly) she spent 7 week in the NICU, wasn't aloud to feed for almost a month, ( I pumped) Had a silo put on her inside to protect them from harm.. Had surgery when she was 7 days to put it all back in but there wasn't enough of her to cover everything so we could see inside our little girls belly for 2 1/2 months.. Got to hold her on a pillow when she was 8 days old.. was on a vent for 11 days.. When she came home we were up every 1hr to 2 hrs. for feedings the had med every 3, 6 and 12 hours.. Had to change her dressing ever 12 hours to start and then every 24 hours then every other day and had to do it in a sterile way.. Plus i had a 19 month out little boy with me at all time.. i was able to stay at the hospital with my mom there to help me as much as she could.. So i was just curios if any other moms babies had any other problems...

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Andrea - posted on 02/06/2014

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I would really love to be able to share stories or even just talk with someone about my daughters story... Thank you again for reading..
Best wishes and take care..

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