Any one have a child with Plagiocephaly? or Torticollis?

Maggie - posted on 04/11/2012 ( 6 moms have responded )

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My Little one is 6 months and has been getting Physical Therapy for her Torticollis for a great while. Today was her last session, she still has alot of tighness in her neck muscles so we are on the process of fighting insurance for more in home therapy sessions. Praying we get them. But because of this she has been in a Plagiocephaly helmet for about 5 weeks now. Its amazing how the helmet has already done so much for her head in only 5 weeks. Anyone else out there dealing with the same?

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Brenda - posted on 04/13/2012

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My 3 1/2 year old niece has had torticollis since birth. She was getting physical therapy from a program we have over here but it ends when they turn 3. She still has torticollis but because she also has problems with her eyes (she was born with optic nerve damage) the doctors seem to think that is what is causing her to tilt her head to one side, so she can see better. We will probably never know until she is old enough to understand to tell us. I hope things go very well for your little one. I will keep her in my prayers. Brenda

Maggie - posted on 04/11/2012

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Im so sorry Kimberly. Luckily with girls it can be easily covered with there hair.

Kimberly - posted on 04/11/2012

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thats good im glad u gt the help i had no one on my side so my daughter kaylee still has a lump on the side of her head that she will have to live with for the rest of her life

Maggie - posted on 04/11/2012

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Her helmet was not covered either. Our County Commisioner Chico Ciro Rodriguez threw us a plate sale fundraiser and we raised all the money. Medicaid only covered the Physical Therapy Sessions. Its amazing when you see the community come together to help a little baby. :)

Kimberly - posted on 04/11/2012

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my baby girl now 7 had they same problem bt her insurance didnt cover the helmet but im gald u got one for ur little girl and im glad its working god bless

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