Any other Moms have children with VUR? (vesicoureteral reflux- bladder

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[deleted account]

Hi Nicole!
See my previous post (directly above yours) and some of the other previous ones in this thread. I hope this helps!

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Sarah - posted on 02/28/2012

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My daughter was diagnosed at 8 months following a febrile infection. We think she likely had a silent infection since birth. She had bilateral Grade 3. After 3 antibiotic allergies and a breakthrough infection we opted for her to have surgery. She had the Deflux procedure done a week before her first birthday. She stayed on antibiotics for 2 months post op and has now been 7 months postop without infection. Our surgeon said if she made it 6 months without one he'd consider her repaired. It was our best parenting decision we ever made. Now she's a healthy, happy 19 month old and will have no memory of all the catheters, testing, surgery, or medications.

Stephanie - posted on 02/28/2012

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I found out at my 20 week ultrasound that my baby boy has dilated kidneys on both sides. Referred to a high risk OB/GYN I had to have non-stress test every week from 28 weeks pregnant till birth. He still had dilated kidneys at birth. Found out he has a Grade 5 VUR. Right now he is 3 months old, they have him on a low dose antibotic since birth. They are monitoring him right now. The doctor said they is a slim chance he could outgrow it but it was very slim. We have to go every 3 months for a ultrasound and testing to check to see how his kidneys are working. Just wanted to share my story and found out the outcome of other people in the same situation as us. Besides his VUR he is a healthy, happy baby boy. Just wondering about the long term outcome of this condition.

Catie - posted on 10/11/2011

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My daughter is 10 months old and was just diagnosed with Grade 4 and Grade 2 VUR. She has had 3 UTIs in the past 4 months. Waiting to hear back from my urologist, any advice?

Nicole - posted on 02/25/2011

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Hello everyone, i was told that my son has a grade 4 VUR and that he may need to have a operation for it. what kind of one do they do? really nerves about it.

[deleted account]

Hi! My name is Holli. I have 4 children, 2 of which had VUR. My oldest we found out by accident right before his 4th bday. The 2nd was only 3mo old and we were told we had to have her tested. She had it as well. My oldest is now 11yr old and doing great. He had a bi-lateral hemi-nephrectomy (means they took out 2 kidneys). His reflux was the worst any of the doctors had ever seen, but it only goes to grade 5, so that's what they put him has. The other had it at grade 3, but with her, it was low enough that they put her on preventative medication and it corrected itself. I have had all four of my children tested and have no problems answering any questions anyone has on this. Seeings as I have dealt with this since 2001, I would be happy to help anyone with any questions or recommendations.

Michaline - posted on 02/12/2009

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We found out our son was having issues with draining his kidney's and bladder when I was 8 months pregnant. He had his first surgery when he was 2 months to puncture his Ureterocele and so far everything has been going pretty well. We are waiting to see if they will do another surgery because the Urologist said that it was still pretty large and we could see it in the sono. He is on antibiotics daily too...first it was Amoxicillin which gave him horrible diaper rash, now it is Septra. We are keeping our fingers crossed for good news from the next testing in March.

Raidee - posted on 01/22/2009

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My daughter goes to Hopkins too! We are considering surgery for her, but hopefully she will be able to go without it. She had to have a minor surgery to puncture a ureterocele (sp??), and so far, it has helped. Last year, she went "infection-free" though, she is still on antibiotics every day. They recommended giving her cranberry juice every day also (which thankfully she loves), because it has an enzyme to prevent bacteria from sticking to the bladder wall. Her grades were pretty bad, but we haven't done a test in awhile. I'm almost scared to. :o(

User - posted on 01/21/2009

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What type of surgery did she have?  Do you remember the grades of reflux that she had?  We are hoping not for the surgery but my daughter has grade 2 on the right and grade 4 on the left.  How old was your daughter when she had the surgery.  Her urologists at Hopkins won't consider surgery until she is older (she is only 2)

Tracey - posted on 01/20/2009

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Yes my daughter had this until she was old enough to do surgery! It was a nightmare!

Raidee - posted on 01/20/2009

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Yes! My daughter has had two kidney infections, the first one when she was 4 months old (when she was diagnosed).

User - posted on 01/20/2009

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Quoting Michele:

Any other Moms have children with VUR? (vesicoureteral reflux-)


It is from the bladder to the ureter to the kidneys.  Not the normal acid reflux.


 

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