any other moms who have children with Alopecia?

Katie - posted on 08/19/2009 ( 3 moms have responded )




My son who is 11 has been recently diagnosed with alopecia. Just wondering if there are any more children with it in or around our area? and how you are coping with it.


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Colleen - posted on 06/21/2012




My daughter, age 4, was just diagnosed with alopecia today. Not sure how to react to it since I don't know her future.


Girlio - posted on 08/20/2009




I had it. I was diagnosed with it in Grade 1. The MOST bizarre advice we got with the BEST results? This sounds totally weird and I know you won't believe it, and I have NO idea where it came from but COW SALIVA! Get a cow to lick your head...Crazy, absurd, and well kinda gross too, but I don't have it any more, I didn't have it when I went into Jr. High. I don't know when or how it went away and the docs were very surprised also.

My mom did a tremendous amount of research when I was diagnosed and somewhere that is what she read, amongst other things as well. For us, that was the cheapest easiest attempt at a cure or solution and we were all about to try everything. It's one thing when a boy is bald, but a girl! MAN! the little boys in my class were all shaving their heads anyways so I don't think that a boy would be have been as ostracized as a little girl would have been.

Julie - posted on 08/19/2009




I do not have a child with Alopecia, but my husband has a form of it. He is very consciencious about it and keeps what hair he has closely shaved. At age 11, your son probably has a lot of other issues with it such as standing out in the crowd. Hats are an option, of course, but depending how teachers/ school counselors help you might want to go address the class or have your son address what makes him different. My son was born with a deformed ear and deafness on that side. We made it a point of addressing the whole class (yes, I had to talk to more than one classroom) and really helped.

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