Lynsey - posted on 11/23/2010 ( 4 moms have responded )
Hello everyone! I have joined to see if there are any other parents on here with Children with DiGeorge syndrome- I am having a problem finding groups for my age group, and mom's I can relate to.. I enjoy hearing from others and their experiences - my daughter is one years old and was diagnoised at 5 weeks (already had 1 malrotation surgery at Sick Kids) although I do not fully believe what my Dr's are telling me in regards to issues we may have in the future... I would like to hear of anyone else's experiences- any tips for questions to be asking the dr's? Thanks!!!