Anyone else out there dealing with a child with a sensory processing disorder?

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Kim - posted on 10/27/2008

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I am an OT who has worked in pediatrics. Here are a few books I recommend: "Sensory Secrets"- talks about addressing issues before things get really bad, "The out-of-sync kid" and there is a companion book on activities you can do at home called "The out-of-sync kid has fun". Ask your OT if there are other books you can read for your child's specific need.

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Melissa - posted on 09/10/2009

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My daughter just turned 5 months old and we just went to a GI specialist for acid reflux and they think she actually has sensory hypersensitivity disorder. She is always stiff and is not very cuddly although sometimes I can really get her to relax. She will not eat her bottle unless drowsy or sleeping, She cat naps all day long and fights sleep like I have never seen. We are going to be starting occupational therapy soon and are doing daily massages now. This is our first baby and we had to go through IVF to have her. I am feeling very helpless and very stressed. Has anyone else had a child diagnosed this young and does the OT therapy help? She is a happy baby who is smiles a lot, but I am concerned about the future.

Nicole - posted on 12/20/2008

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She is not diagnosed with SPD I have not seen a developemental Pediatrian yet. I think I probably should the further we get into this?????

Nicole - posted on 12/20/2008

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Has anyone tried a listening program by Dr Tomatis? I just brought my 6 year old for an OT evaluation for all of the things everyone has mentioned and the Ot suggested going this route for her final cost being $7500. Any info would be greatly appreciated.

User - posted on 11/05/2008

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My son is a sensory seeker. He flaps and spins and would suck on salt shakers! What I found was helpful was to give him a massage at night. Sometimes if he is really bad, I put him in the bathtub.

What I was told was to give him a sensory "diet" of things to try to calm him.

The book the out of sinc child was one that was recommended to me. There is also a follow up book called "The out of Sinc Child has Fun" it gives many ideas for play activities which target certain senses. It is good because you can almost do "at home" OT to supplement what he gets professionally.

BTW: My son has Autism.

Jennifer Miller - posted on 11/05/2008

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Yes, my son has sensory processing disorder & sensory integration issues. He's three and he can't move his mouth to make vowel sounds... he can say "ma" and "mo" for more and "no". We were with an OT for a year and now ST and going for more evaluations at UVA...

Anita - posted on 10/27/2008

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Thankfully, her teachers and dance instructors have been great. We are all just taking stabs in the dark. Her OT tells me that if I hadn't had her in dance, her coordination problems would be much worse. (We put her in dance in hopes of correcting her "Pidgeon-toedness.")



The OT has her working with thera-putty to strengthen her hands. The poor kid has developed a lot of pretty effective coping skills on her own.

Terri - posted on 10/27/2008

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I forgot to mention, I'm a licensed social worker and no one was listening to me either!!

Terri - posted on 10/27/2008

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Anita, you just described my son except he is 9 y.o. He is currently receiving OT for the weakness in his hands (you should have seen how he was holding his pencil) and the other issues you mentioned as well. We are now going for an IEP at school. It's an uphill battle. Everything we've done has been on our own via private pay or insurance.

Anita - posted on 10/27/2008

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I have an 11 y/o daughter that has finally been diagnosed with SPD. She is hypersensitive, has weekness in both hands, and has a bilateral coordination problem. It took us years to get anyone to listen to us, even though I am a licensed professional counselor.



I'm reading books and visiting websites, and still have so much to learn.



Like a lot of kids in her situation, she holds it together very nicely all day at school and then "melts down" when she gets home in the afternoon. Any ideas for heading this off at the pass?

Ashante - posted on 10/25/2008

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My oldest had Censory auditory processing disorder and my son has a whole set of his own if you like to chat you are welcome to add me. What are you dealing with

Dana - posted on 10/24/2008

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Yes, my son has sensory processing disorder. We deal with it on a daily basis but he has been through early intervention and is now in special needs preschool which has helped him significantly. I feel as he is getting older he has overcome some sensory issues. Which exactly are you dealing with?

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