Anyone have a baby with Marfan Syndrome?

Jami - posted on 04/24/2010 ( 3 moms have responded )

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My baby girl, 18 months, has been diagnosed with Marfan syndrome. I was wondering if anyone else has a baby with the same condition and what type of care I should be seeking for her. Thank you!

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Yazan - posted on 02/19/2014

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yes i can help with some information , my baby boy 7 months old , he have marfan , to contact me please
zan5000@gmail.com
Yazan Ibrahim Yousef (Facebook)

Kayla - posted on 02/22/2012

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my daughters physical therapist keeps hinting at me that she might have this and its really upsetting. ive drivin myself crazy about it since she was like 3 months old. searching for everything and anything online. can you give me some info about your lo and about what happens and stuff??

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