Anyone have a child with a disability?

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Sharlene - posted on 10/22/2011

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Hi .Elliot have you thought about sight cards or words maybe. Cheers

Sharlene - posted on 10/22/2011

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Hi , I have a 8yr old boy that has Autsim. A 18 month old that has Hydrocephlau and a 6month old that has Haemopilla B. so yeah I would love to talk to yourself and other mums .Cheers

Loretta - posted on 10/22/2011

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my son is 14 and has a disability.would be nice to have someone just to talk to

[deleted account]

"How do you teach a kid sign language when they can't concentrate on one thing or sit long enough to teach them anything."

Sign and speak at the same time -- it's just a matter of association. Kids learn language like a sponge. But you have to be consistent, so that the associations build up quickly.

In other words, it's like teaching a baby French by having native speakers come over and, well, speak French to the baby.

Coressa - posted on 11/20/2008

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i have a son with spinal bifta and hydrophluas who is 14 and doing pretty good

Kristina - posted on 11/20/2008

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I guess the only question I have is. How do you teach a kid sign language when they can't concentrate on one thing or sit long enough to teach them anything.

[deleted account]

The reason signing can help them speak earlier is because sometimes the only thing standing in a kid's way is their physical ability to be nimble with their mouth -- the lips, tongue, breath thing. If you give them a way to communicate their needs and thoughts that avoids that roadblock, they become much less frustrated, and learn the *language* while still working on the *speech* part.

Jani - posted on 11/20/2008

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I also have a home daycare and try to teach all my kids some kind of signing around the age they start sitting up to eat. (6-9mo.) It helps them communicate so much better, They feel less frustrated and I feel it helps with self control and they can tell you what they want instead of screaming! When they reach age 2 or so we start working on the alphabet, if you learn that, you will always be able to communicate.

Kristina - posted on 11/20/2008

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Really that's crazy. I never thought of sign language. I guess I never thought that teaching them to sign would teach them to talk better and more.

Kris - posted on 11/20/2008

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Has anyone tried www.signingtime.com? Sometimes learning sign language helps. It helped my son with learning to speak earlier. Just a suggestion.

Jani - posted on 11/20/2008

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There are a lot of people who have to deal with hardships on a daily basis. What gave me hope when we found out about Emma was that if we did our part, she would improve. I know most parents really want the best for their kids and we followed EVERYTHING the drs. and thearpists told us to do and even found some ways to help her that they hadn't thought of. We kept at it through the tears and the joys and now Emma is in kindegarten, right where she should be, learning right along with the rest. We worked so hard in the begining, right when we found out about her CP(she was 2) that the thearpists ended up "firing" us. they told us that we were doing such a good job that we didn't need them any more. I'll have to say, that God played a big part in us being able to get through that, and many other, situations.

Ann, I am not familiar with SMA, but would love to encourage you and your family that nothing is impossible. You see, Emma was born with Hypo-plastic Left Heart syndrome and we were given 3 options at her birth...have a surgery in 2 weeks to place a shunt in her left valve, which would have to be replaced repeatedly as she grew, children born with this and are successful with surgery still only have an expected life span of 40 years, we could put her on a transplant list and hope a heart would come available soon or we could let her die...yes, a Dr. actually told me that was one of our options. Well, to make a long story short, and if you want the long one, just let me know...she was rushed by helicopter to St. Louis children's hospital and when they did their own assessment, they said there was nothing wrong with her heart, she was a very sick little baby, but her heart was perfect!!! We did what we knew to do, which was pray, and asked our parents and family and friends to do the same. We did not believe that her beign here was an accident, or that she was going to die. She actually gained 7 oz. in the flight from the hospital to St. Louis. Some of this was attribuited to the fluids, but the Drs. could not explain the rest or the fact that there was now nothing wrong with her heart. It was an uphill battle to get her well and all, but like I said, she is "normal" now. Be encouraged, you are not alone and please add me if you want. I will be glad to help in any way I can.

Kristina - posted on 11/20/2008

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My son is 19 months and I dont know if it will help you any. But he has part hearing loss but all the ear infections that he's had all his life. And it is very hard to deal with sometimes. He can't hear unless you yell. And his talking is not whereit's suppose to be. It sounds like he talks in a differet language. And it's hard cause everyone is always saying stuff and critisizing me about my parenting. And it's just somethng that I have to deal with. They say that his talking will get better with time it just depends on how much time we put into his learning. And it's very hard so him to focus on anything. It's alot easier for him to listen to his father cause he works with people with disabilities and he knows how to work with him.

Laine - posted on 11/20/2008

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My daughter had a rare syndrome (GBS). You are not alone:-). How can we help you?

User - posted on 11/19/2008

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I am needing to feel that I am not alone. My daughter has a disease similar to SMA. I am seeking advice and support for my family.

Tamara - posted on 11/19/2008

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My youngest son has Lennox-Gastaut Syndrome, a severe from of childhood epilepsy.

Hi Jani! One of my best friends adopted a little girl with CP last year. It's amazing to see her blossom this year.

Angela - posted on 11/19/2008

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Our daughter doesn't have a physical disability but she has some form of add.This coming from the school psychologist. He couldn't tell us what kind. I thought there was only one kind.

Jani - posted on 11/19/2008

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I have a girl with cerebel palsy, she is 6 now and doing very well. Why do you ask?

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