anyone have a child with immunodeficiency?

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Mona - posted on 01/22/2013

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Hi. I am in a support group call Adults with neutropenia on fb if you would like to join?

Kate CP - posted on 08/22/2009

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Neutropenia is a hematological disorder characterized by an abnormally low number of a type of white blood cell called a neutrophil. It's an auto-immune disease most commonly caused by chemotherapy, but I never had chemo. One day I wasn't feeling well so my mom took me to the doctor. He drew some blood and said he would get back to us within the week. Later that night at about 7pm he called and told us to run, not walk, to the ER to have more tests done. My ANC (absolute neutrophil count) is about 600 these days. My white cell count is about 2.0 (Normal range varies slightly between laboratories but is generally between 4.3 and 10.8)

The medication most commonly used for me and others with my condition is a GCSF (Granulocyte colony-stimulating factor) called Neupogen. I hate the stuff but it's save my life more than once.

Kate CP - posted on 08/22/2009

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I have neutropenia and have had it since I was 15. So far (thank God) I'm the only one in the family to have it. Let me know if you have any questions. :)

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