anyone have children with dandy walkers syndrome

Jaime - posted on 02/20/2014 ( 2 moms have responded )

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hi my name is Jaime I have a soon to be 12 year old son that has dandy walkers syndrome,micke was diagnosed shortly ater his first birthday,it was a huge shock to the system no,one even knew what it was really and there was very little knowledge on it,and no one seemed to no the cause of this syndrome ,I learned over the years to just get on with it the best I can,micke has been quite lucky in the aspect as iv recently read reports of children with severe cases of it,i have been given little if any support with micke and as we all no these children are blessed and so brave and loving its a shame theres not more help out there for them , after discovering your page im really looking forward to getting to no other parents in similar situations,always here to offer support looking forward to hearing from you soon.

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