Anyone having a child with antley bixler syndrome

Juliana - posted on 12/23/2013 ( no moms have responded yet )

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My daughter who will complete 10yrs tomm has antley bixler and pfizer syndrome. Wanted to know if its advisable to remove her uterus but want to keep her hormones untouched. Is this possible. She has a trachea and a g-tube. Her g-tube is giving her some problem of which i cant understand how to help her. She is in immense pain and cant talk. Please help.

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