anyone heard of baby blue breath holding syndrome?

Sarah - posted on 01/11/2011 ( 8 moms have responded )

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my daughter has had a couple of 'seizures' where if she gets too excited or upset, fustrated etc... she goes stiff, falls back goes unconsiouse and stops breathing for afew seconds. shes floppy and blue when she comes round and after awhile seems to be ok, we have taken her to the doctors and hospital and they have diagnosed this 'baby blue breath holding syndrome' but she is also having tests just to make sure its nothing more seriouse. just wondering if anyone else has experienced this?

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Amanda - posted on 03/26/2011

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My son (3) has done this a few times. Normally when he is upset. He will scream till it's a silent scream, throw his head back and I watch him turn from pink to blue. My MIL didn't believe that he would do something like that and she told him off one day and he held his breathe and passed out. I told her to lay him on the floor, that he was fine and he would come out of it on his own. Needless to say she panicked and was screaming at him to breath. I had to get hubby to prise him out of her arms and put him on the floor coz she wouldn't let him go. 3 hrs later she was still in shock from it and little one was tucked up in bed asleep.
My sister also did it, and regulary in public. Mum used to get asked if she wanted an ambulance called and get the filthiest of looks when she said no and left my sister on the floor to come out of it.

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Heather - posted on 03/09/2012

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yes. It is called BHS and it is an involuntary response that occurs while or after they get upset/crying. I am looking for any type of support group for things that work or don't work in aiding the child through the next two years or so. the doctors say not to worry, but it is the scariest experience of you life.

User - posted on 03/25/2011

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I am currently in the hospital with my 10-month-old right no for what I had thought was a 2 different seizures. I now am reading about this syndrome and coming to think that this is probably what is going on, although the doctors have not even mentioned it! But an EEG test was run just to see if it was or not, and it came back completely normal... so I get the feeling my son is definitely experiencing it. We found out he is anemic when we got admitted, and that is also a major factor in this syndrome.

Sarah - posted on 01/13/2011

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thankyou for your replies, very scary but in a way nice to know that others have been through this, was awfull because she got so excited when we were in town and dropped down in front of everyone, trying to explain to people why we didnt need an ambulance was awfull they just didnt understand and got called afew names saying i didnt care about my daughter and that i was a bad mother! darnt take her out again!!!

Tiffany - posted on 01/11/2011

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All three of my kids do this...yes it is very scarry....the get so upset the forget to breath and down they go....stiff..eyes go weird ..and theyjust go limp in your arms for about 20 sec...then they are fine while you are scarred .... I also had my oldest tested for epilepsy and he was fine..he is 7now and he hasn't done it since he was about 4...so im thinking they grow out of it...all you can do is catch them so they don't get hurt...and I try to blow in there face to get them to breath..good luck mommy

Gerda - posted on 01/11/2011

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my sister's child also cries herself out, turns blue, recover again, and tired after, just wants to sleep. Doctor's believe it is Tantrum?

Rosie - posted on 01/11/2011

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I have not personally experienced this with my own children but, I have seen a friends little boy do this when he is really distressed. It is really scary and horrible to watch but for some reason they do seem to come out of it.

I was so scared the first time this happened in front of me and it wasn't even my child, so I would hate to think about what you must be going through.

The little boy I mentioned is now 7 and doesn't do it anymore. Not sure if I have helped but as I said I have seen this before.

Hope you little girl is ok.

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