Are there any moms out there that are dealing with a child that has SCID?

Kelly - posted on 09/01/2012 ( no moms have responded yet )




My 14 month old daughter is in the process of being diagnosed with Severe Combined Immunodeficiency or SCID. We are currently taking up residence in the hospital and doctors keep coming in and talking to us but their jargon is really hard to digest and understand. baby girl is getting labs done twice a week and we are waiting to get some of here tests back to find out if its an enzyme issue or if we are going to have to go through a bone marrow transplant. I guess my questions are how do you handle it as a parent, what stage is your child in and have you started treatment. How are they responding to treatment etc. Any bit of information would help

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