ARE THERE ANY PARENTS OUT THERE ALSO DEALING WITH A CHILD THAT WAS DIAGNOSED WITH (RIGHT) CRANIO-SYNOTHSIS????

Vanessa - posted on 07/21/2011 ( 1 mom has responded )

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I FEEL SO DEPRESSED RIGHT NOW MY SON HAS HIS EMERGENCY APPOINTMENT FOR THE SURGEON CUZ HE HAS GROWN A LUMP ON HIS HEAD UNDER HIS SCAR FROM HIS SURGERY BACK IN "2008" FOR CRANIO. AND IVE NEVER ACTUALLY TALKED TO OTHER PARENTS THAT SHARE THE SAME STORIES I FEEL SO ALONE IN THIS WORLD ND THINK I WILL NEVER GET OVER THE FEELINGS OR EMOTIONAL IMAGES OF MY BABY BEING PUT THROUGH SUCH A LARGE SURGERY AT JUST 1YR. AND THAT FOR THE REST OF HIS LIFE HE HAS TO CARRY A SCAR LARGER THAN MOST CHILDREN WHO HAS HAD THIS SURGERY THESE FEELINGS ARE HORRIBLE I NEED SOME ONE TO TALK TO OR HEAR OTHER STORIES THAT COMPARE !!!! UGH... SOMEONE PLEASE HELLLLLPPPPP!!!!!!!!!!!!!! :(

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Christy - posted on 07/21/2011

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Ask your Dr if there is a support group to go to. These groups work wonders. If not, find a website addressing this issue.

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