Are there any parents with a vater syndrome child ?

Sue - posted on 11/07/2015 ( 1 mom has responded )

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I am the parent of a vater syndrome child who is now 42. I am writing a book about
our experiences and would be interested to hear from others who have gone through this or are needing support at this time. His whole life I have never met anyone with the
same birth defect. It was a very lonely disease with little help for us to understand
what was coming or how to handle what we were going through.

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Sheila - posted on 11/07/2015

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So sorry to hear.Don't know anything but wish I did.I myself always look for answer on the internet that's how I found this site.Hopefully I can get some input on my situation have a wonderful day sorry don't understand but wish you well God Bless You and your family

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