Sue - posted on 11/07/2015 ( 1 mom has responded )
I am the parent of a vater syndrome child who is now 42. I am writing a book about
our experiences and would be interested to hear from others who have gone through this or are needing support at this time. His whole life I have never met anyone with the
same birth defect. It was a very lonely disease with little help for us to understand
what was coming or how to handle what we were going through.