Smith_family0609 - posted on 01/24/2014 ( 3 moms have responded )
Hello moms...So I have a sort of long, drawn out story about my son. My son is 11 months old and since 2 months of age, has not eaten enough to gain well on his own. To this day, he does not eat more than 2-4 ozs at a time, 3-4 times a day. He was breastfred until 8 months then went to formula since my breast milk was having to be supplemented with high calorie formula as it was. Right now, he is taking 3 oz of formula with 1 oz of heavy whipping cream (boosting bottles to 40 cals for oz) and adding 1 tablespoon of heavy whipping cream to babyfood, when we can get him to eat any. We see a nutritionist weekly and feeding therapist and are now waiting (after starting the referral process 4 months ago) to see a G.I. doctor. We have tried everything under the son to get him to gain...he goes through spurts where he will eat well for a week or two, gaining 1/2 oz a day, then suddenly he stops for a few weeks and loses weight. Right now, he is 17.2 lbs. born 7.2 lbs. We have fortified formulas, tried giving him cheeses, chicken nuggets, all the fatty foods we could give him and again, he goes through periods of loving it all then hating everything. He has been tested for reflux, had ultrasounds and blood work done, and he is normal aside from never wanting to eat. It has been a total and utter nightmare... He gained weight so well and so fast right after he was born, then developed severe eczema which caused his skin to peel off. His doc perscribed a HIGH dosage of singulair which is when all the feeding issues started. Stupid me, we did what the doc said and kept him on it for 4 months before another doc said "what the hell are you doing giving that to him!?" We stopped and began seeing a new doc. He seemed to start eating once he was off the medication, but has never increased the amount of food he could intake and he NEVER shows signs or ques of being hungry. Its such a struggle to get him to eat that I'm in tears daily. He is now very ill with RSV that my daughter brought home from preschool and has since completely stopped eating...he is so skinny that he can not afford to lose weight and we are back to the discussion of a feeding tube :( I held out hope all the time that he would be well and eating like a normal baby by his first birthday, but nothing has changed...He is super tall (in the 65% for height and >.0.50% for weight). I just don't know what to do...we have seen 4 different docs and no one has any ideas. The nutritionist and feeding therapist both agree he needs to be seen by the G.I. but we are having issues getting in thanks to this crappy new insurance mess. He is mentally advanced, walking, running, talking, climbing and super active but can focus for long periods of time on puzzles and games. For 11 months old, he acts more like a 2 year old. But I'm at the ends of my rope with getting him to eat...if I don't push every 2-3 hours to get food in him, he loses weight FAST. He needs close to 1000 calories a day to gain well and gets around 700 when he is well. Thank you to all who have read through my drawn out story about my son. I'm so lost and when 4 docs have already said they don't know whats wrong or even where to send him, as a mom, that is absolutely frightening.