Bad Reaction to Zoloft for my Autistic daughter. Help

Elizabeth - posted on 06/08/2015 ( 7 moms have responded )

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I have the most beautiful, amazing five year old daughter. She has Autism, anxiety and OCD. This winter it seemed her OCD was taking over her life. After much agony, we decided to start her on a low dose on Zoloft. She seemed OK for the first month although the medication was making her very hyper. She did
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I have the most beautiful, amazing five year old daughter. She has Autism, anxiety and OCD. This winter it seemed her OCD was taking over her life. After much agony, we decided to start her on a low dose on Zoloft. This medication was highly recommended and prescribed by her doctor. She seemed OK for the first month although the medication was making her very hyper. She did have a decrease in her OCD behavior and seemed to be showing new interests. At about six weeks we noticed that my daughter was having a very difficult time speaking, She uad really just started speaking. She stopped making eye contact and stopped all spontaneous talking. When she would talk it was not functional. We would prompt hi mom and got, "Hi Mom, mom hi, hi mom, mom hi. Always backwards and forward talk and always mute times. She stopped showing affection another recent skill. We went to the doctor and were told we needed to double the dose. We did that, for ONE day. She was so so wired. Now we are in the process of weaning her off. She is down to 1mg and will be off tomorrow. I am desperate to know if anyone has had a similar reaction and if their child returned to pre Zoloft state. I am so worried for my little girl and am afraid she is going to completely stop speaking, her rituals are already back and worse than before. Please help. This child is my heart
a decrease in her OCD behavior and seemed to be showing new interests. At about six weeks we noticed that my daughter was having a very difficult time speaking, She uad really just started speaking. She stopped making eye contact and stopped all spontaneous talking. When she would talk it was not functional. We would prompt hi mom and got, "Hi Mom, mom hi, hi mom, mom hi. Always backwards and forward talk and always mute times. She stopped showing affection another recent skill. We went to the doctor and were told we needed to double the dose. We did that, for ONE day. She was so so wired. Now we are in the process of weaning her off. She is down to 1mg and will be off tomorrow. I am desperate to know if anyone has had a similar reaction and if their child returned to pre Zoloft state. I am so worried for my little girl and am afraid she is going to completely stop speaking, her rituals are already back and worse than before. Please help. This child is my heart.
She is in therapy 30 hours a week and I am right there with her. We tried everything before considering this medication, but she had stopped functioning. Anyway, she started to come around last night. While the OCD is back in full force, she also was talking again.

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Elizabeth - posted on 06/09/2015

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Again, please understand that somehow your comments were directly linked as a response to my cry for help. I am beyond sorry. It was just very painful after a very long month. I wish you all the best in the world.

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Elizabeth - posted on 06/09/2015

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I am so sorry Kathy. I just went to this post because I was having such a hard time and I though you were saying I neglected or abused my little girl. I was just so confused because it sent me an email saying that was your response to my post. I have been crying all morning because I was so confused. I am sorry if I said mean things. I am sure you know how it is to want to do anything to protect the little ones you love. I am so so sorry and so relieved. Please forgive anything I said. I am quite sure you are a wonderful person. I just felt like I was being attached for the hardest decision our family has ever made. Sorry again.

Kathy - posted on 06/09/2015

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To Elizabeth. I haven't read your posts but no I'm not talking to you. This forum is a bit confusing. It's hard to see who's talking about what. Anyhow, I do wish you the best. I think you will agree that being a parent is one of the hardest jobs in the world. Keep your spirits high and chin up! Hard to do but we have to try.

Regards,
Kathy

Elizabeth - posted on 06/09/2015

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It seems to me that someone should call CPS on your terrible daughter. Instead you are worried about a mother who does everything for her child. Has spent every penny, every minute, every fiber on her little girl. She sleeps in the bed with me so I can keep her safe. We kiss her and love her every second. We keep her safe when she tries to injure herself because this world is too much. We make her laugh everyday. We agonized about this medication for a year. It was the hardest decision I have ever made. Harder that watching our little girl go through open heart surgery. Why you would say such horrible things to me is breaking my heart. I am so so confused.

Elizabeth - posted on 06/09/2015

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Maybe you misunderstood something. HER DOCTORS put her on this medication. You have no clue what it is like to have a daughter who has it so rough. You are the worst person in the whole wide world.

Elizabeth - posted on 06/09/2015

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Kathy Dyer, are you talking to me??? I hope to god not. This child is our life. We are with her thirty hours a week in therapy, I only put her on this medication because it is what the doctor recommended. We took her off the second things seemed off. I do not understand why on earth you would say that. I have poured my heart and soul into this child. If you are talking to me you are a terrible terrible person.

Kathy - posted on 06/08/2015

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I've looked up what is actionable with CPS and this type of neglect is not. I've also talked to a professional counselor and she agrees that there is probably nothing I can do. She is not being physically abused or harmed so there's nothing I can do. It's extremely difficult to deal with. I cry many times knowing that this child is treated poorly. I think there will be a day where I have to cut all ties because it's killing me thinking about it day in and day out. I have to keep myself healthy and my marriage healthy. It's hard when I'm so upset all the time.

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