Born with club feet.

Jan - posted on 10/06/2009 ( 11 moms have responded )

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I have a son who was born with talipes (club feet). If you or anyone you know has a child born with this condition or needed surgery on another disability, please join my circle of moms site In the CLUB (KIDS BORN WITH TALIPES). There is some advice about benefits that may help, my story of how I coped, especially as I already had 2 children with their own medical problems. I hope it gives hope to other parents who find it difficult. x

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Vanessa - posted on 10/08/2009

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my daughter was born with PFFD(basically a short femur and undeveloped hip socket) and will need hip surgery and bone lengthening procedures throughout her life. Can I join?

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Melissa - posted on 07/27/2014

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Hi ladies i was just wondering if their were any new things with you son Joanna, I am 41 and i was born with clubfeet they call it partial clubfeet but the option was given to my mom to break my ankles and reset them and she opted not todo so. They decided it would heal itself with wearing high tops. Well at 18 i had fallen arches and my ankles were hurting and the doctor gave me cortizone shots in my feet. now i am 41 and i got some insoles made for my my feet but they hurt me more than help. I am issues with my ankles i can hardly walk . My knees are out and hurt as well, I believe it all goes back to my feet. just was wondering if you son had a surgery if it helped.

Jan - posted on 10/08/2009

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Hi Ilse, my son played rugby, football & all kinds of sports at school, then one night during the winter he was in agony with his legs. The following day I sent in a note to his gym teacher saying could he be excused from PE as he'd had a bad night. Later in the day I recieved a call from the teacher to say he'd asked Adam what the problem was with his legs, Adam had told him about his club feet & the ops he had endured, the teacher was amazed, he said that in the 3 years he'd taken Adam for PE he had never realised there was a problem. I asked him if he had not noticed the way Adam walked to which he replied "I thought it was a typical swagger!!".He added that Adam had never used this to abstain from PE & that he was a real trier! How proud was I?? He also took up karate at 7 years old & went on to become a brown belt (3 tag).

I agree with you in that you have to let them get on with things & not dwell on anything, life is for living. Your son is lucky to have a fantastic mum. Best wishes to you both. xx

Ilse - posted on 10/08/2009

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Hi Jan

It is so nice to talk to somebody who knows how I feel. Yes I find that when it is cold he tends to complain more about pain in his leg.



And then of course sport... He enjoys rugby so much. I have tried to get him into cricket, but he was just not that "into" it like rugby. I have spoken to our GP about it and he recommended me to let him play rugby as long as he feels he is up to it...

I want him to lead a normal life so I decided just to let him be...

The thing that just breaks my heart is that when they had a sports day and played 2 or 3 matches, the next day he can barely walk.



When he complains of pain, I just run him a hot bath and let him soak for a while and then I have the pleasure of massaging his leg and foot.



Thanx for the invite to join your group.

Greetings from a cold and windy Walvis Bay.

Jan - posted on 10/07/2009

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Hi Ilse, my son has problems with his legs & feet in the cold weather, our GP thinks its arthiritis caused by the ops. I have to sit up rubbing his feet & legs for him, have you had the pleasure of massaging a smelly 19 year olds feet??lol. How has it affected your son? If you want to find out more you are more than welcome to join my group. x

Ilse - posted on 10/07/2009

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My son was born with talipes. Only his right foot was affected. His foot is also not formed normally. He's got only 4 toes of which two is joined together. His right foot is also shorter than his left foot. His right leg is also shorter (about 1.5cm) than his left leg. It was corrected when he was only 5 months old. He is now 10 years old.

Jan - posted on 10/07/2009

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Quoting Joanna:

My son was born with talipes. It was decided that it would heal itself. But now at 14 he has fallen arches and has to wear insoles in his shoes, his ankles are also out of alignment. We have been told that an operation at this point would be really painful.I wish i had insisted on something being done years ago, but as a young mum you beleive what doctors tell you!



Hi Joanna, I totally agree with you that we all tend to trust our Doctors without really too much doubt, afterall dont they want whats best for them?? however, we also want whats best for them. Many years ago I was watching This Morning with Phil & Fern, they had a Consultant named Mr Pool from Chertsey hospital on there talking about something called the Ilvarof cage (not sure if thats how its spelt). They showed a gentleman that had just had it removed after several months, you would not believe the improvement. I wrote off to Mr Pool & received a letter back inviting us to go & see him. He advised that although there were things he could do, he was not prepared to take my son on as he had already had several ops which he would have to correct as they had'nt been done how he would have done them!! It would definately be worth talking to this man, especially as your son has had no surgery. I wish you luck. Please join my group...In the CLUB (KIDS BORN WITH TALIPES) & let me know how you get on. xx

Jan - posted on 10/07/2009

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Hi Adrienne, anyone can join if you have a child that has talipes or ANY other condition you think we may be able to help with or if you just want to chat about it thats fine, look forward to getting to know you. xx

Joanna - posted on 10/07/2009

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My son was born with talipes. It was decided that it would heal itself. But now at 14 he has fallen arches and has to wear insoles in his shoes, his ankles are also out of alignment. We have been told that an operation at this point would be really painful.I wish i had insisted on something being done years ago, but as a young mum you beleive what doctors tell you!

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