Cafe au lait spots on a 3 month old

Jenn - posted on 08/19/2013 ( 4 moms have responded )

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Hello. I'm new here! My 3 month old baby girl has about 16 cafe au lait spots and is being tested for nf1. I'm so scared if she has it she will never live a normal life.

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Gena - posted on 08/22/2013

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I dont understand why such important things wont be paid by the insurance. I found 3more small spots on my son,i will ask the doctor to take a look at it.The big one on his back was also small at first.I wish you and your daughter good luck and hope it will be ok.

Jenn - posted on 08/21/2013

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Hello. The spots are all the light brown color and oval shaped. She has no white spots. I had a genetic blood test done that we are paying for out of pocket because the insurance will not cover this test. I should be getting the results Friday and will keep you posted. My daughter is such a beautiful baby I am praying that she will be ok. Good luck with your son.

Gena - posted on 08/19/2013

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I hope all goes well.. may i ask if the spots are only that light brown colour or has she got spots where the skin is whiter then the normal skin? My son has 3 cafe au lait spots,i am just worried about the one on his back,it has a white spot next to it.

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