Can anyone help and suggest?

Anup - posted on 09/21/2016 ( 1 mom has responded )

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At time of birth, my son's breathing moment was fast so he was shifted to ICU and afer 3 days, he had minor convulsion. At the age of 6 months, he was crying excessively. Doctor told that he had stroke and convulsion. He had Right MCA territory infarctwith left hemiparesis. He was medicated with ecospirin & eptoin at Apollo, Chennai. His development was going fine but his left hand, leg and waist was weak. And suddenly after 9-10 months, he jerks his head forward and still today, this jerk isn't controlled (may be its fits). Whle in sleep also, he suddenly wakes up after having fits.Now, he's medicated with levipil & Velperate. But Velperate also didn't suit him. After having velperate, usually after sleep, he keeps his teeth tight and blinks his eyes continuously and bends his legs & hand slightly for few seconds. But when Trioptal syrup was given this jerking head was in control but not fully. We took him to NIMHANS recently but there also, not diagonised or treatment was done. Doctor only suggested for medicine-Lebvipil & Velperate. So, we are very much worried. My son is 2 yrs. but he isn't able to walk by himself and don't utter words like mummy etc. His waist is also weak. By holding, he walks but not properly. He jumps and gets excited. Now, he’s also having homeopaethic medications parallely. What to do??

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Kathy - posted on 09/22/2016

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How I wish I could help you with your son! You are such a wonderful mother to him, supporting him in all his treatments and doctor appointments. Strokes, including pediatric strokes can happen to anyone at any time. Because most people think children are unable to have strokes, they are often not recognized or treated properly. Since your child has been diagnosed with having had a stroke, I would suggest you continue to advocate for him and ensure he is getting proper and adequate care. Some permanent conditions arising from strokes seems to be what you are describing…body weakness, while the head jerking, teeth clenching, and eye blinking seems to be seizure related. I would suggest continuing to consult with his doctors until a right combination of anti-convulsion medication regime is found and his seizure-like activity is very well controlled. Is your son currently receiving physical or developmental therapy? I have worked with special needs children for more than twenty years, although I have no experience with pediatric stroke victims, and therapy will help with his body weakness and ambulation. He is never too young for physical and developmental therapies. I would also suggest you choose physicians who are comfortable caring for such a young pediatric patient, such as your son and is very experienced with the pediatric population. Please also, take good care of yourself! Take time to do something every day only you enjoy! Seek support groups in your area to find parents who are dealing with issues such as yours! They will provide not only needed support but could act as a referral source! I will keep you and your son in my prayers!

Kathy

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