Can anyone help with profound autism?

Tiffini - posted on 08/07/2012 ( 5 moms have responded )

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My husband is currently in a nasty custody battle with the mother and is trying to obtain full custody of his son. His son is non-verbal, still in diapers, doesn't take direction and is kind of in his own world. However, he is the sweetest most lovable kid. His mother refuses to put more effort into getting him the help that he needs. He only goes to school for a half day, he's in no other programs outside of school. When he yells, screams or cries she hits or yells at him. We have already been told that within the next few years his condition will become worse and the mother will not continue to have custody because she won't be able to control him and he may be a danger to her other three children, one who is a newborn. Does anyone have any suggestions or info on profound autism and what his future may be? Is there anything that we can do to get him on the right track? This diagnosis is a new for everyone in our family and we're looking for ways to make the best out of it! Thanks for any comments ♥

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Tiffini - posted on 08/07/2012

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Hi Cherish. Thanks so much for the info. We're in IL. I'm not sure what a CES waiver is but I will look into it. His mother is currently receiving medicad so I'm sure he would be able to receive therapy under that, she just hasn't taken any initiative to get it done.

Cherish - posted on 08/07/2012

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Hi,
How old is he?I can not understand why the mom won't let him have custody..if she is mean to him and is not doing any therapies w/him.
My son is 10 and has severe autism(which I prefer over the term "profound"),he is also non verbal and wears diapers.He has some significant behaviors and can ,at times,be a danger to younger children and himself.
What state are you in?Is he on any of the waivers?If he is not you need to get put on the waiting list for the CES waiver.
As far as therapy if he has medicaid he should be in speech and OT.You can get get behavior therapy thru the waiver.If you do get custody then you need to go thru your house and modify anything that is a potential danger.I took my son to a augmentative communication therapist at Children's and he got a speech device,and having that has greatly helped w/ the behaviors that are caused by frustration.There are alot of things you can do...but I do not want to babble on here,so message me if you need info.
Nobody knows what the future holds,every kid is different.If he has severe autism he will probably need care his entire life.none of the adults I know w/severe autism are living independently,tho most of them are happy and live a full life,with support.My son also was dx'd w/epilepsy and that is fairly common for people w/autism.Now I am starting to babble,like I said message me if you want more info :)

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