cerebral palsy, cortical blindness related to PVL

[deleted account] ( no moms have responded yet )

My son braedon is a 3 yr old blessing. He has many obstacles and with a strong family support we push him . He was born with cerebral palsy and cortical blindness related to pvl. We attempted to feed him by mouth but came to a realization that we were trying to push for something that wouldn't benefit him long term and got a gbutton. No more coughing up his food or aspiration and he is filling out quite well. With cortical blindness I understand it may improve with work but my son doesn't use much voluntary movement at all. I'm not sure my boy will process anything. He has some tone but doesn't reach for things or know what they are yet and I don't know if he ever will because of the brain damage. I don't know alot of the medical terms and try to stay positive but also want to be realistic for my boy. Its hard sometimes to have my husband and sometimes my daughter with me at the appointments because I feel like I know more but the doctors speak very lightly on the severity if you know what I mean. I believe he is still young. I pray and hope but sometimes feel like the hope makes us slightly delusional. The cvi is something I'm not quit getting yet along with cognitive ability?

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