child has no medicaid . he has seizures and is autistic

Raven - posted on 01/05/2015 ( 8 moms have responded )

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The fact that I am so frustrated and dont know where to begin . . I live in Arkansas ( my hometown ) just moved back here in October .I have two baby boys the ages of 1 and 3 . my 3 year old was diagnosed with seizures at 9 months . as he got a little older I started noticing a lot of things other kids could/would do but he didn't know how to do just yet . he was way behind on his walking , he only no 2 words anyways moved to Georgia and begin seeing neurologist and speech therapist come to find out he has a learning disability . he is not potty trained still in diapers . I now live in Arkansas and has already applied for ssi in December 1 , 2014 has yet to hear anything . he doesn't have medicaid its been 90 days already . I been dealing with this for 3 years nobody is trying to help at all . he takes medicine for his seizures but the meds or so high I can't afford them again he has no medicaid . I'm trying to keep my faith but its getting harder and harder . I would love for my child to be in school learning doing things kids his age are able to do but the fact that every state I move to can't help me is frustrating . if someone can pls , pls , pls ,pls , pls help me give me some answer anything , I just really need someone to talk to cause I'm about to lose it . I'm trying to be string for my babies but its getting hard now . someone anyone pls

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Sarah - posted on 01/05/2015

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I looked up the guidelines for Individuals with Disabilities Education Act, (IDEA) this is an act that was mandated by Congress. I found some info that may help you:
(1) Parents may request that their child be evaluated. Parents are often the first to notice that their child’s learning, behavior, or development may be a cause for concern. If they’re worried about their child’s progress in school and think he or she might need extra help from special education services, they may call, email, or write to their child’s teacher, the school’s principal, or the Director of Special Education in the school district. If the school agrees that an evaluation is needed, it must evaluate the child at no cost to parents.
and
(2)In its re-authorization of IDEA in 2004, Congress added a specific time-frame: The initial evaluation must be conducted within 60 days of receiving parental consent for the evaluation.
Ok, so that is the Federal Law, a huge, long, wordy document. Here is the link for services in Arkansas:
http://specialchildren.about.com/od/Spec...
If you look on there, it will show you exactly how to request an evaluation, the time-frame and forms to fill out. It says it will do a parent requested evaluation.

Sarah - posted on 01/05/2015

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I don't live in Arkansas but our public schools are required to take over when Early Interventions leaves off. These rules are not unique to my state. Have you actually contacted the Special Needs department? Even if you can't see a local doctor, you already have a documented diagnosis.

Ev - posted on 01/05/2015

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No, they do not move any faster. I think its at the least a 45 day waiting period on the regular medicaid. They have to go over your income, expenses, and other things to see if you meet the qualifications to be on it. If you do not fill out the information exactly they will not process it and deny it. If they ask for more information from you, you have to provide that as well. Even with that they still might deny it. I can not tell you the reasons yours would be denied if it came to that as I do not work there anymore and was not a case worker. But they are very strict in their guidelines. I am not sure what part of the state you live in but I am in the north west corner. THere are a few agencies that are non-profit that offer evaluations and if the child qualifies for them they have places to get the child therapy. There are more than one of those places. You can google it. Try evaluations for children with special needs. That might get you something. Also call back DHS and ask them if there are places in your area that will do free evaluations for your child besides the public schools and other resources that can get you the help you need.

Raven - posted on 01/05/2015

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I've spoke with schools here they say he would need to see a doctor and the doctor would have to send a referral to them and they would have evaluate him to see if he qualify . I call the dhs office everyday checking the statues just to be on hold for 30 mins and say medicade is still pending . I have medical history paperwork etc that my son is autistic and has seizures . I can careless about ssi I'm really focused in the medicaid BC he hasn't seen a doctor since I've been here . you would think with a sick child they would move a little bit faster

Ev - posted on 01/05/2015

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When you posted the 90 days part it was not near the medicaid. I live in Arkansas. I used to work for the medicaid office a while back as a Secretary. I do know for a fact that they take your income, expenses, and such into account to see if you qualify for it. There is also ARKIDS which you can get if you meet income guidelines. And your post to me looks like you are yelling at me. So if you left off any information on that application it would have been kicked out or they would have called you requesting the information. Also, if you did not qualify they would have sent you a letter or called. But as the other poster said and I as well, things take time to get done.

Raven - posted on 01/05/2015

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Evelyn Witt : I SAID I APPLIED FOR SSI DEC 1 , 2014 WHEN I SAID 90 DAYS I WAS REFERRING TO THE MEDICAID THAT I APPLIED FOR OCTOBER 1 , 2014 AND HIS CASE WITH SSI IS STILL PENDING

Ev - posted on 01/05/2015

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You said you applied on DEC 1, 2014 and its only Jan 5, 2015. It has not been 90 days since you did the application process. Did you go to DHS to fill out that. It takes time for them to decide what to do with your child. ANd as for SSI that takes time too. It has to be done thru a lawyer.

Sarah - posted on 01/05/2015

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Call your local public school and ask for the special needs coordinator. Now that your son is 3, he is aged out of Early Intervention, but should get help from the school system. SSI is a slow moving process, but keep careful records and you can get reimbursed for expenses sometimes. Do you have a Public Aid office nearby? If yes, go and ask for help there. Does your child qualify for Medicaid due to disability or financial status. It should take 45 days to process your application, up to 90 if a disability is being determined. When you fill out the application, don't leave anything blank and make copies of all of the documents you send.
Also, seizure disorders are not a covered disability unless they occur with a certain frequency. Make sure he actually is diagnosed at autistic and list that as his primary diagnosis.

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