Childhood Apraxia of Speech

Leia - posted on 02/09/2010 ( 14 moms have responded )

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Are there any moms out there that have children with speech difficulties? My son is 2 and has had speech problems. He is seeing a speech therapist and she feels that he may have a speech disorder called apraxia of speech. I was just curious if any other moms have children with this speech disorder and how to best help my son. Thanks for any help you can give me :)

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Amy - posted on 08/10/2011

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My oldest now 7 has been in thereapy since a little over the age of 2 yrs old. At 2yr 9mo he was diagnosed with CAS (childhood apraxia of speech); CAS is described as difficulty in planning and programming speech movements. At times the apraxia only affects the motor planning in speech, however, it too can affect the rest of the body as well. I have 3 children, 7,6,3 yrs and my 6 & 3 yr old too have speech issues although not described as the CAS. Persistance will pay off in the long run. All of my kids are in therapy, got a bit to go but its helping. My son is sent home with motor excercises to strengthen and better coordinate his tongue movements in order to be able to pronunciate certain sounds correctly alone and in conversation. Best of luck.

Laura - posted on 02/10/2010

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My 13 year old son had this as a young child. We saw a speech therapist for 2 years. When he started school, we realized he was having problems, and discovered he was dyslexic. Be aware that apraxia is a sign of dyslexia. Not all children will be dyslexic. We have used some computer programs available through our speech therapist to help him with the processing of words, and letters.
To help him now make him watch your mouth and be cautious on letting other children talk for him. I know exactly how you are feeling. It is hard, and can be frustrating.
Hope this helps.

Colleen - posted on 02/10/2010

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My son didn't speak until he was 3yo and only I understood him even then. Eventually he spoke and was in speech therapy K-1st grade. He is now 20yo, working, graduating college and has a steady girlfriend. What I have learned through the years is that he thinks about every response. Often he takes several seconds to respond. If the person with whom he is speaking is "chatting" he often doesn't speak as he doesn't get the opportunity to answer. He speaks more in thought provoking conversations when a response isn't expected quickly. Please don't get caught up in "labels" and realize every child learns at his own pace and is an individual. My older daughter and younger son are very social and quite different. They helped balance my concern. That being said, listen to the health care providers, trust in your knowing your child better than anyone and good luck.

Lisa - posted on 02/09/2010

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My oldest didnt start talking til he was 3 my 2 yr old still doesnt talk both are in speech tharapy one thing that helpped them and I had my doubts at first too... But at Toys are us and online there is a DVD called Talking Hands works with basic sign language some children Learn visually there fore you learn basic signs then he might start talking.

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Tammie - posted on 02/11/2010

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I started my son in speach at 2 and 1/2 he took speach until 7th grade he does very well now. Don't let people discourage you or your child my son is now 17 and healthy and has been in the gifted programs since he started school. He is now recognized in 5 areas. It is just a little thing and with some help he will be fine. No worries.

Robin - posted on 02/11/2010

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my son is going to a spceeh therapist but i have never heard of apraxia, but dont give up keep going to the therapist, it is helping my son.

Shanel - posted on 02/10/2010

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I totally agree with Rebecca. Ask your son's therapist ways you can better help him. I have heard that children with apraxia need a lot of repetition and that it takes time. Also don't worry about a diagnosis at this young age. Even though progress may be slow, celebrate the small steps and accomplishments. I don't know what your son is doing now, but for starters see if he can imitate sounds you make. If he can move on to simple words (it may be approximations, but take it)! All the activities he is doing with the therapist, make sure you carry over in your daily routines. You are your child's best teacher and that therapist may come in once a week. Get feedback from her, so you know what to do the other days of the week. Have confidence in your abilities to be your child's best teacher!! Keep us posted!

Colleen - posted on 02/10/2010

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My child was diagnosed with ADHD and a dual diagnosis of anxiety disorder. These diagnoses didn't come until 2nd grade. He was tested for learning disorders and was found to have none, such as dyslexia. In fact his IQ is quite high.

At the age of 2, there are so many things that can be happening, I would caution you not to react to "norms" and to listen to your gut instinct. Also, boys are generally delayed compared to girls. My daughter was speaking in full sentences at the age of 2. It made me nervous but my mom kept reminding me that each child is different.

Amie - posted on 02/09/2010

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My nephew has Apraxia. He's making progress but it's been difficult. He's in a special school for kids with delays like him to help him adjust. He's made enough progress that me should be able to start regular kindergarten next year on time! He's turning 5 this year. =)



This FB group ( link didn't work if you do a facebook search for Childhood Apraxia of Speech Association of North America (CASANA) you'll find it) is a good starting point. There really is a lot of support out there if you look. If you want to PM me I could even put you in touch with my friend (nephew's mom). I'm sure she wouldn't mind talking to another mom going through the same thing.

Pip - posted on 02/09/2010

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Hi Leia, one of my twin daughters has verbal dyspraxia. She was seeing a speech therapist for some time. Even though she is now ten, she has certainly come a long way with persistence, guidance, and a lot of love. She is currently in a group at school, called Rainbow Reading, and has made incredible progress. I often get her to read to me, and if she has any trouble trying to say it, I get her to break it down into blocks. Once she gets the idea of saying it like that, then I get her to say the complete word.

Hope this helps you. Let me know if I can help more.

Rebecca - posted on 02/09/2010

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Your speech therapist should be able to give you lots of reading material about this disorder - make sure he/she doesn't just fob you off - use their qualifications to make sure you understand that is part of their role. stay positive

Carey - posted on 02/09/2010

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I have only heard of this one other time, I remember the parent was asking for info just like you, because it's very rare she wasn't getting much... don't give up keep searching and reaching out different places :)

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