Carrie - posted on 04/25/2015 ( no moms have responded yet )
Hi! My name is Carrie. I have a 3.5 year old boy named Jack who has a partial chromosome deletion which involves a severe developmental delay- he's delayed in all areas. I'm just wanted to talk to someone who has a child with similar delays or chromosome deletion?? His deletion is: 15q13.3-14. I've been told it's very rare. Jack just started walking in December (YAY!)- we're doing preschool, pt, ot and speech several times a week-- he's had SO much success this past 6 months and I'm so very proud of him but it would just be nice to talk to someone else with a child with similar challenges.