Renee - posted on 11/03/2016 ( no moms have responded yet )
My 2 month old granddaughter has just been recently diagnosed with chromosome 16 Q deletion. There are so many unanswered and overwhelming questions and feelings about her future . If anyone is familiar with chromosome 16 Q deletion please help. I have reached out to a few chromosome deletion sights but have yet to find a support group for chromosome 16q deletion. If you know any support group please, contact me in private message.