Cloaca imperforate anus

Kirsty - posted on 06/17/2013 ( 7 moms have responded )

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Hi I'm a single mum to a daughter who was born with cloaca in 2009 and very annoyed as nobody nos what it is even the doctors I signed my daughter up with had no clue as to what cloaca is its very very annoying

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Jackie - posted on 02/11/2014

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Hi Kirsty i know you posted a while ago but i have just came across your post. There is a group on facebook called 'persistent cloaca' currently with 65 members. The group continues to get bigger and bigger and i hope you can join. x

Kirsty - posted on 06/18/2013

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I've searched everything and nobody nos a thing I just want to talk to others mums/dads that are in the same situation I no 1 in 20.000 babies are born with it so there must be others out there n thank you

♫ Shawnn ♪♫♫ - posted on 06/17/2013

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I would suggest looking for a specialist in the area. Even with extremely rare conditions, specialists can be found...

Geographically, are you in the US, or another country?

If you're in the US, I'd suggest consulting with the Children's Hospital Network.

Kirsty - posted on 06/17/2013

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I no it all my daughter is nearly 4 years old and have been searching ever since she was born its just annoying that because its so rare people just don't want to learn about it we all get taught stuff from babies so why stop when a rare medical condition comes along :/

♫ Shawnn ♪♫♫ - posted on 06/17/2013

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If it is a rare enough condition, it is unsurprising that it is not widely known. As a matter of fact, I have no clue what the condition is myself.

What will help you is to do some research on the condition yourself, and arm yourself with a file of information that you can start the physicians with.

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