Congenital Adrenal hyperplasia

Nash - posted on 07/08/2013 ( no moms have responded yet )

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Hello I am Ester. My 5 week old baby girl Eyllah has CAH. The peaed found iut when she was 9 days old. We thought she was having pure stomach cramps then the Dr tested her blood.
I have never heard of this before so I am shocked or was. I am African and I live here in Africa. She is taking frorinef and hydrocortisone.
My worry is her tsking medication all her life. Her weight gain is generally okay but she is vomiting a lot lately. Im soo worried. Is anyone in the same situation?

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