Cyclic Neutropenia

Darlene - posted on 11/24/2013 ( no moms have responded yet )

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I think my daughter might have cyclic neutropenia even though her Dr. fluffed it off. Her Dentist identified this condition as well as a Dr. friend. Her symptoms are exactly like the posts of children here & on other sites/blogs I have read. CBC keeps coming back o.k. but we have yet to do the 6 week 3X per week blood work. A naturopath has helped with severity of flare-ups. My biggest worry is we know nothing about her medical background as she's adopted from China. She already has a genetic condition which makes me think it's time to do other genetic testing. She is almost 9 yrs. & still 40lb & 42" tall. Was around 2 kilo/6lb. at 3wks of age. 16lb. at 9mo. A very vomity baby, a ferebral seizure, chronic mosquito bite infections, viral, pneumonia, sinus infection, strep, ....we live on Emerg. It's been 1 yr. since the worst has hit & we are no further ahead. It takes so long to get referrals & appointments. Feeling anxious & just wish we could find some answers. Thanks for listening.

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