cyclic neutropenia

Anna - posted on 06/27/2014 ( no moms have responded yet )

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Hi, im just wondering if anyone's child has symptoms the same as my 2 1/2 year old. recurring high grade fevers, every two weeks for the last year, fever becoming relatively stable at about day 3 but child condition worsening, delirium, then seizure. wakes up a day or two later as if nothing happened. all symptoms ceased for two months when she was taken off toddler formula but have now come back, seizures are not as strong though. also her tetanus, diphtheria and mumps immunisations didn't work. for two years i have struggled and have now finally got specialists appointments, although her gp can only diagnose 'viral illnesses' and would prefer me to listen to his advice. i dont know how to treat her illnesses anymore, nothing is working, please help.

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