Cyst on baby

Brittany - posted on 04/24/2013 ( 21 moms have responded )

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I'm 34 weeks and my doctor just told me the baby has a cyst on his brain. A choroid plexus cyst, I'm very very scared. I have been reading on google and they normally go away within 28 weeks. What should I expect? Will my son be ok? Will he have something wrong with him? Im 17 and this is my first child please help me! I'm so scared!!!

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Diana - posted on 04/26/2013

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Speak to the doctors, stay OFF Google! Take care of yourself, and the baby. I had a Grade 3 brain tumor the size of a golf ball and I am FINE! I'll keep you and your baby in my prayers! Stay positive, it makes a difference!

Brittany - posted on 04/25/2013

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They haven't sent me for anything. This the first I have been told about it. My doctor has left me completely in the dark! If I knew befor hand I could have had all these things taken care of, I have school. I can't just up and leave, not towards the end of the year like this. I, extremely upset with the New York medical system. I can believe they waited till I'm 34 weeks to say " oh the cyst has not gone away" I was completely floored!

Cecilia - posted on 04/24/2013

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Did they do the level II sonogram or do your test for alpha fetoprotein to look for trisomy 18? If you want to double check on top of those two coming out clean you can ask for amniocentesis.

They would be looking for an extra chromosome. If they find it, The child might have a chromosomal abnormalities, such as down syndrome. With that said the odds of finding trisomy 18 is actually pretty low. If i remember right it's like 1 in 2000.

Choriod plexus cyst are more common than some might think. Most of the time it means nothing. The reason they do the testing is because it is simply one sign that does seem to show up in chromosomal disorders.

Where did you read they normally go away? I have heard that some adults have them.
"It is believed that many adults have one or more tiny CPCs.[1] CPCs have no impact on an individual's health or development or learning. The fetal brain may create these cysts as a normal part of development."
http://en.wikipedia.org/wiki/Choroid_ple...

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Donna - posted on 05/07/2013

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I'm sorry you are going through this, poor thing. However, it is not as bad as you think. At least, it shouldn't be. My son had several of those cysts on his brain. Most of them went away but he has two that remain. He is almost 3 years old now. They look at the cysts every year, to measure growth, etc. They have not grown and have not caused any issues. They told me the same thing, that many people are walking around with these for their entire lives, without knowing.

I was terrified, and still am sometimes. But so far, they seem perfectly harmless. The brain is an amazing thing. It can develop right around things things like this. And the part that did not develop as a baby, is usually compensated for by the rest of the brain. My son is right on time with every milestone and even in some cases ahead of the curve.

The main thing you need to do is relax. Your baby needs you to be calm and happy. That is the best thing you can do. They sense depression, anxiety, fear. It can really affect their nature, after birth. It's much better for mommy to enjoy her pregnancy as well. I will pray for you to have peace. I totally understand what you are going through.

Diana - posted on 05/07/2013

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I wouldn't freak out unless the doctor tells you that you have a reason to be worried.

My sister had this happen with her oldest son as well. She had to go in for a more detailed ultrasound to get a good look at the cysts. The doctor told her that people have these all the time without having any ill effects at all. He said that there are people who go through their entire lives without ever knowing that they have them and sometimes only find out if they go in for x-rays because of a head injury.

My nephew is now going on 15 years old & there is absolutely nothing wrong with him physically or mentally. As a matter of fact he is extremely intelligent, quick-witted, and has wonderful artistic talent.

Amanda - posted on 05/07/2013

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I am and have always been a firm believer of not freaking out until a doctor gives you bad news....stay positive, unfortunately you will be forced to grow up very quickly having a child at such a young age... and i do not mean that in a negative way.... I am 35 and still have some growing up to do..... but every moment of hardship you might face will make you stronger.... and when your child smiles at you will be worth all of the struggles you might face.... Please do not panic yourself just yet.... each case will be different so you cannot go by what you have read on google.... google is only to arm yourself with info so you know what to ask the doctors..... Stay positive! I cannot say that enough...

Michelle - posted on 05/07/2013

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1st thing I need to ask, Is the cyst at the back of the head, at the base of the skull? If so it is Dandy walker syndrome. Most doctors will tell you to just leave it alone, but watch it to make sure it doesn't grow. They usually wont do anything about it unless it grows. I have a nephew with one on his face just below his left eye. He was born with it & the doctors did laser surgery on him at age 11 to shrink it. He is 15 now & He still has it. He is smart plays sports & has no ill affect from it. Then there's my son's best friend. He has one at the base of skull, (dandy walker syndrome) He too was born with it. He is 27 years old now, has a BA degree from Fresno Pacific University. The doctors told his parents that unless it grows, there is no need to worry. So as you see there may be no reason to worry. I have been taught not to worry until they tell you to.

Angie - posted on 05/06/2013

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Much like the others, they found a CPC with my second at the 20 wk sono. My doctor wasn't concerned since there was no indication of a chromosome disorder (down syndrome, trisomy 18). Since I was concerned they offered a level II sono but said they could do a regular sono at 30 wks since they usually disappear by then. I trusted my doctor and opted for the 30 wk sono and the CPC was gone.
My girlie is 3 yrs old now and perfectly healthy and normal with a very active imagination! I have read that there are adults that have CPC's that are not effected by them. It's very hard not to worry, especially with your first, but try to relax, Best wishes!

Keena - posted on 05/02/2013

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Unless there are other issues on the ultrasound baby should be fine. My daughter had the same thing, and my ob/gyn actually told me she wished they would remove this as a marker. Unless there are other issues such as club limbs etc every thing is more likely than not fine. My little girl is a very happy, very healthy 19 month old that is excelling in life.

Tascha - posted on 05/01/2013

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My daughter is expecting at 16, and when she went in for a routine sono they found the same thing in her baby. She was only about 4 months at the time. Yes it is very scary, and you need to remember that your stress will stress your little one, So calm yourself.
I am sure they will send you to a specialist and everything will turn out fine. For my daughter and granddaughter everything has ended up fine. I am surprised that it was not found sooner. Good luck and I will pray for you and your baby

Lisa - posted on 04/30/2013

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Hang in there, I had the same with my 11 & 1/2 year old Son. Scared me nearly 2 death reading on all the possibilities / defects, life expectancy, etc. He was born, healthy, happy & full term & has grown to be a healthy, happy, active 11 year old, Football playing, Academically gifted child! My Mom's a retired Medical Transcriptionist & has read of this often. Actually, I think it's "more common" to find now, with the wide spread use of Ultrasound technology.

Aubrie - posted on 04/29/2013

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I was told my second son had the same thing at his 20 week ultrasound. The doctor told me they are quite common and are only a concern if they see more genetic markers. He is now an active 16 month old, perfectly healthy and happy.

Carol - posted on 04/28/2013

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Our son was told the same thing, his daughter is 2 now and speaks 3languages and is perfectly healthy. We prayed and tried not to worry. Hope everything is good for you and baby.

User - posted on 04/27/2013

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Where in his brain is it. My youngest daughter was born with a pituitary gland cyst we did not find out til she was 13 months. She was fine but she was very very small for the first three years of her life. They doctors said it was not supposed to be there bit they figured that it would resolve itself. She is now 3 1/2 and growing normally. Just stay on the doctors and be thankful you know about it already.

Sally - posted on 04/26/2013

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My kids both had them. While most babies with chromosome disorders have them, an awful lot of perfectly healthy babies have them too. I was really scared until I looked up the statistics and saw that it really didn't raise the risk of my baby having anything wrong all that much. The perinatologist tried to use it to scare me into some dangerous tests, but luckily, I didn't want to kill my baby even if there had been something wrong so I didn't take the risk. Most chromosome disorders have noticeable enough physical traits that the ultrasound should give them a pretty good idea if he's okay.
Good luck

Cecilia - posted on 04/25/2013

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yes, it can be unsafe to do it before 15 weeks. Beyond that they do it sometimes later on to check on lung development.

I had one done when i was 38 weeks. It seems like it's scary and all but there is a very small chance (like a million to one) that they would do any damage.

Cecilia - posted on 04/25/2013

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well since they said it hasn't gone away I assume they were doing a level II sonogram at the time. Some doctors check everyone's alpha fetoprotein. I know my doctor does.

So call the doctor ask about having a amniocentesis done.

once it comes back clean you dont need to worry.

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