daughters have neurofibromatosis

Renee - posted on 04/16/2009 ( 1 mom has responded )

11

10

1

my 14 and 10 year old have neurofibromatosis.. wondering if any other mums have children with nf?

both girls suffer optic nerve brain tumors. would love to chat to other mums going thru same or similar.

MOST HELPFUL POSTS

Beth - posted on 03/06/2011

31

14

12

my son is 22 months and has NF AND optic gliomas. hes going through chemotherapy now to stop them from growing. did your kids have to do this?

This conversation has been closed to further comments

1 Comment

View replies by

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms