Emer - posted on 01/10/2011 ( 4 moms have responded )
Hi Mum's, my 15month has Periventricular Heterotopia. We found this out when she was 11months old. With Periventricular heterotopia it is a condition in which nerve cells do not migrate properly during the early development of the fetal brain. My Daughter has the less commonly condition of a more severe brain malformations,- small head size, developmental delays, and extremely flexible joints. My question is if there is any other Mum's out there that might have a little one with this same condition. At the moment my little girl is sitting up, clapping her hands, doing pretty much what a 10month would be doing. We had a lot of trouble with her feeding from day one, but we have gotten that under control, She is very bright, and loves to read book. I getting very worried that she might never crawl or walk and the older she gets I finding it really upsetting. But apart from all this she is the happyest little one, sleeps really well. I hope some one can help me.