Ameer - posted on 06/09/2015 ( 2 moms have responded )
Hi , My daughter is 9 months now and we have been told that she has developmental delay and she is more like a 4/5 months old baby. she is still been investigated and we recently had Mri done and basic genetic test and few other blood test. All results came normal and we had a appointment in GOSH with a neurologist who has told us that they will need to to do another MRI with general anaesthetic. and they will be sending us to a Genetic doctor so they can do more test and try to find out why is she having a developmental delay. She did not use to smile until this last few days. even now we have to work hard with her so she can give 1 smile. She can roll over on 1 side and not the other. She cannot sit and does not have any head control. Very worried and waiting time for the test is 3-6 months more . We as parents are very worried and do now know if she would be able to catch up as a normal child or will the delay will be there for long term. We are seeing general paediatric & paediatric neurologist but no one seems to know what is reason. We are confused and with every appointment get more and more confused. Any advise or any info will be greatly appreciated.