Did anyone else suffer from Amniotic Fluid Embolism?

Rosie - posted on 09/27/2009 ( 3 moms have responded )




I had my daughter Oct 2009 and had an amniotic fluid embolism. In a very short explanation its where the fluid that the baby sits in gets into your blood stream poisoning you. I'm really scared of it happening again even though they tell me the odds are 1 in 80,000 of it happening just once so the chances of it happening twice is near impossible. I'm scared.

Here is part of my story & more info on it.

Very rarely, a volume of amniotic fluid—the fluid that surrounds the fetus in the uterus—enters the woman's bloodstream, usually during a particularly difficult labor. The fluid travels to the woman's lungs and may cause the arteries in the lungs to constrict. This constriction may result in a rapid heart rate, irregular heart rhythm, collapse, shock, or even cardiac arrest and death. Widespread blood clotting (disseminated intravascular coagulation) is a common complication, requiring emergency care. Most deaths occur within 5 hours of event. 25% of survivors are neurologically intact. Incidence, mortality 1:80,000.

Ava (my baby) came back not having anything wrong with her at all, they would keep the IV in her head for a few more days to be sure she was going to be okay.

I was able to go home a week later, Oct 17th. But I had to have whats called a midline put into my right arm. This is a tube about 8 inches long going into my vain with all of the equipment attached to my arm so I could receive IV injections each day for the following 2 weeks at my house. On top of taking 12 pills a day. They say I'm lucky to be alive. They had kept me in labor for 32hrs and I wouldn't dialate past 3 so they did a c-section and that is what saved my life even though they didnt find any of this out until 2 days later.

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Katrina - posted on 01/17/2013




Hi there,
I had AFE August '12 and survived with no after affects. Sadly my little girl didn't make it. With family and friends pregnant now or recently had newborns I can't stand FB (re support networks). Will hopefully be able to connect with other women who have had this. I can't believe the varying affects this condition has on women and babies.

I've read if a view forums of women terrified of it happening again. I was told i have as much chance of it happening again as any other woman.

Jill - posted on 11/21/2011





I see that you posted this over two years ago, so perhaps you already havae had another child. Either way, there is a facebook group http://www.facebook.com/#!/groups/37809042934/ that was created by the Amnitoic Fluid Embolism Foundation. If you join that group, you will be able to talk to other women who has suffered an AFE and who have gone on to have a healthy pregnancy. It's a great group of women and they provide wonderful support to one another.

Sharon - posted on 09/27/2009




It sounds very scary.

You have a right to be afraid. You also deserve to live without fear. remember? Lightening doesn't strike twice in the same place. You're 1 in 80,000 happened. You're covered for another 80,000 instances!

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