Merry - posted on 10/17/2010 ( 5 moms have responded )
A friend of mine just had a baby and he is diagnosed with digeorge syndrome, all I know so far is he had a heart deformity, had surgery, and is facing a long nicu stay. I'm looking up the syndrome myself but I'm wondering if anyone has experienced this or knows anything to explain it.
Any info would help, I don't think she is up to talking about it much so I don't want to ask her...but I'm really curious and want to be able to help her if I can.
Edit: the baby is a boy, named Christopher. He was born last week Tuesday, the 12th.