Disabled Husband with 2 Children 10 & 6

Zoroomy - posted on 08/07/2016 ( 2 moms have responded )

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Would really like to speak to other people in similar situations I'm 36 and my husband is 44 - I don't have any family support just friends and 2 daughters 10 & 6 my husband has been disabled for a number of years hasn't been able to work for the last 4 and his condition will not improve it just may deteriorate further. He has degenerative disc disease and neuropathic chronic pain and is highly medicated he is unable to walk more than a few steps sided with crutches and uses a mobility scooter when leaving the house.

I work in a job I'm very lucky to love for 16hrs a week which fits in with my role as wife, mother and Carer - we live in the South of England and it would just be nice to be able to talk to other people who are in my situation who will be able to relate to day to day stuggles for example my 10 year old is hitting puberty and the mood swings are greating me down and making me quite depressed 😢 Thank you for reading x

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Zoroomy - posted on 08/08/2016

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Thank you for responding we don't get any support from a clinic he just regularly sees his GP he does have a Carer who comes out twice a week which helps if he is up to leaving the house - how is your situation now the kids have grown up? As I do worry about the future x

♫ Shawnn ♪♫♫ - posted on 08/07/2016

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Zoe, my husband was injured and left with a crushed nerve injury in2001. We have been living with disability and chronic pain since.. it was an adjustment, for sure!

Hang in there! Is your husband able to help with parenting duties? It can be tough to be the able bodied one, having to be the breadwinner, and take on the majority of the home as well.

Do you have pain management centers where you live? That has been one of our biggest blessings, having a qualified clinic that can monitor his meds, etc. We have actually been able to find meds that work well for my husband, and allow him to be more active. This year, we were able to take him off the transdermal fentanyl and go back to an oral med taken as needed! His is also an injury that will only deteriorate, but it is encouraging when you have a professional team in your corner.

Ask me anything. I will try to give you the best answers I can! I know how it is with the kids, too...mine were 6 and 3 when hubs was injured.

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