do any mums have children with haemophillia?

Mel - posted on 12/06/2011 ( 2 moms have responded )

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hi we have a hapy active 7yr old who has got haemophillia a he was diganoised with it when he was 6months old he nos he has it and carnt cut him selth any bleading if the bleading does not stop after 20mins we have to ring 999 he has to take tablets for 3 days when we wher on the mainland the hospital told me that they could not give him any thing for it & he could not play footbal when i left my ex husband due to domestic violance & moved down to the isle of wight the hospital hear realy helped him told us he can do the normal things a 7 yr old should be doing the only thing is he just has to be a extra bit careful met my new husband had our baby boy thankfully he has not got it even tho im beleaved to be the carrier w find out next year if i am because the genitiatic testing can take up to 6 months.
my advice to any mums who have just got the news that their child has got this is dont worry their is no cure but their is medication if the chid has a blead

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Sharlene - posted on 12/06/2011

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Left something out LOL.With callum he has to have 5mls daily dose of X Factor 10 .and any cut or briuse he bleeds and swells up like a ballon and goes white and grey. We also have Xfactor 9 in fridge for emergency only.

Sharlene - posted on 12/06/2011

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My 8 month old son does ,hes got Haemophilla B which is genetic ,Hes also had 2 major operation and a 3rd this monday coming so they have have the X Factor 10 in place and treatment will be for 7 to 8 days in hositpal .fingers cross .Is your son on X Factor treatment ??? .

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