Does anybody have a child that was born with Shoulder Dystocia, or Erbs Palsy?
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Vannora - posted on 09/15/2011
Thank you Jill for sharing your story. My daughter is now 13yrs old. She's a very confident girl and sometimes I wonder if she has insecurities about her arm. If she does, she sure hides it well. She is an elite athlete also.
Have u considered surgery? I'm so glad to know that u are doing well. Feel free to post and questions or advice. Wishing u all the best.
Jill - posted on 09/14/2011
You're very welcome! I've only met one other person in my life who was born w/ erbs palsy and thanks to the good internet, I can now find others who have it, too. No one has ever heard if it, including most of my drs, so it's nice to be able to relate to others who were born "unique" too :)
Tell your son to feel free to contact me if he ever has anything he wants to ask or share :)
Jill - posted on 09/14/2011
I was born w/ erbs palsy in 1974. It's funny because I never really was bothered by it as a child, but I am more conscious of it as an adult. I try to always remind myself that it could be worse....I could have no movement in my arm, or worse, no arm at all. I played sports and did everything else that kids do...I just looked a little funny doing it :) I try to not let it hold me back today, but it does to a point. I always try to find ways to hide it like carrying things in that arm, putting my hand in my pocket, folding my arms, etc. Some days I get so upset because I was born this way, but I have to remember that this is what makes me unique :)
I, too, was a big baby...9lbs 11 ozs and my mom was all of 5'1". I was "stuck" and the dr just kept pulling on my head trying to pull me out. Another dr came in and ran his finger under my mom's pubic bone and broke me free. I couldn't move my arm for about a yr and then all of a sudden I moved it. Of course my mom freaked out b/c drs said I would probably never have feeling or movement.
Today, I have movement still, although it is starting to stiffen up a bit. I've never had full range of motion and can't put my arm straight, but I can use it. Just like when I was a kid, I do it all....I just look a lil' different when I do things :)
God bless you and your children and make sure to encourage them to do anything and everything they want to do. We can do anything we want, just in a unique kinda way :)
Vannora - posted on 02/13/2009
I have a ten year old daughter who was born with Erb's Palsy. She is a very bright and determined girl. Her condition was due to the same reason, she was too big for me to deliver vaginally. And just like you, all the doctors assured me that she would be okay after a few months and I wouldn't be able to notice that she even had any complications during delivery. That wasn't the case. I took her to see many specialists and therapists. At 11 months old she had a nerve graph surgery. The surgery itself was successful but she still has very limited use of her arm. I was just curious to know how other moms or kids cope with this condition. She is very active physically when it comes to sports. She doesn't allow it to discourage her. She may have to work harder than others, but it's very rewarding to her in the long run that she can do everything her friends can. For the most part, my husband and I don't notice it but the other day while she was folding her laundry, she was getting frustrated because she couldn't hold her jeans with both arms.
I hadn't heard of Erb's Palsy either until my daughter. It seems to be common with big babies and small mothers. I'm very petite and there was no way I should have delivered her vaginally. I think there are some cases that are more severe than others, and there have been some babies that have recovered 100%. Unfortunately for her, that wasn't our case. I'm happy to know that your son is doing well and able to cope with this condition.
Lindley - posted on 02/12/2009
I have an 18 year old son that was born with Erb's Palsy!! He was a big baby...9 lbs. 5 oz. and at first they assured me that his arm would be alright. After 2 years I took him to a specialist and he told me that his arm would never be "normal" and it was due to the doctor not performing a c-section on me and making me deliver him vaginally. My son is very self conscious about his arm, but he's coped so well over the years. I'm used to looking at him and don't notice it anymore..as he's gotten older. We were told that if surgery were done to try and correct it, that it could do more damage..that he should just learn to do things differently than other kids. And my oldest daughter who is 21 now was born with a broken clavicle due to her being so big also..the same weight...9 lbs. 5 oz. Hers did heal..but she has a few problems that we've noticed..nerve damage evidently. I finally went to another ob doctor with my 3rd child and told her straight off that I needed a c-section due to the weights and problems with my first 2 kids. She reluctantly agreed and my daughter who is now 8 was born fine..no broken bones, no erb's palsy. She was the biggest of them all..at 9 lbs. 8 oz. I can imagine that she would have had the same problem as my son had I not had a c-section.
How old is your child and what have you been told about erb's palsy? It's something I hadn't heard of until my son was born..and I've not heard much about it since.
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