Does my son have PDD? sorry so long, not looking for a diagnosis but really need advice.

Rachel - posted on 12/05/2012 ( 3 moms have responded )

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Hi moms, this is the first time i've been on circle of moms, just looking for advice and not sure where to go. I have a 5 year old (just turned 5 end of sept.) that has met all milestones until now, and we are just now seeing that he is having trouble holding his pencil and writing, coloring, tracing, ect...in his preschool class. so I had him evaluated by an OT who found that he has low muscle tone that is very mild but is affecting mainly his hands. I have noticed other areas that seem to be affected by low muscle tone as well, but he is receiving OT weekly right now and i'm not too worried about that at this point. What I am worried about now is that he might have PDD, I have researched autism, asbergers, and other spectrum disorders but nothing seems to fit. Tonight I saw a you tube video about a girl with PSS-NOS and her visit to the park. Some of her behavior is VERY similar to my sons (hesitant or unsure how to answer someones questions at times and just stares blankly), very little bit of hand flapping, is obsessed with Thomas the train and friends toys/videos). The problem I have is that some of my sons behavior could be considered normal-or could not-depending on how you look at it. I do instinctively feel that something is not right with him but I just can't put my finger on it enough to know what/if there is a problem. He likes his routine for instance at daycare he wants the same thing-vanilla yogurt and chocolate milk for breakfast. I also always pack a different fruit and he is fine with that daily change. If for some reason he could not have yogurt and chocolate milk, I could relatively easily convince him to choose something else, but it would take convincing-a problem? I'm not sure. Other characteristics of his are if he sees a Thomas and Friends movie he will want to watch it over and over and over, and memorize it enough that he recites it throughout the day (when i let him watch movies/tv show, I do not let him watch more than 1, but even at that, he will recite it after he sees it), he has some sensory issues (overreacts when he thinks theres going to be a loud noise, is picky with food, more that I could go on about but nothing severe. He carries on conversations, is very communicative, and loves people-very social. There are just certain things other than low muscle tone that seem very slightly off. I'm just not sure if I'm overthinking or nitpicking his behavior because I'm paranoid that something else is wrong. In other words, am I finding problems where there really aren't any? I'm just trying to be pro-active if there is a problem. I would really appreciate any thoughts/advice. I'm just not sure where to go from here...

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Lacye - posted on 12/13/2012

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With Lily, we started noticing signs when she was almost 2 years old when she wasn't talking as much as other kids her age. We took her to a couple of nurse practitioners and each time they said that she was fine and she would start talking when she was ready. When she hit 3 years old back in May and was still not talking, we discovered there was a new baby doctor here in town so we decided to ask her about what she thought. This was back in August when we went to see her. In September, we went to have her hearing test twice (both times she was pretty uncooperative because she is so impatient and hyper) and that was when we found out her hearing was just fine. In October, they ran the tests with the speech therapist and psychologist. Two weeks later, in November, they told us what was going on and immediately signed her up for the local preschool where she can get the help we need.



The diagnosis goes so much faster once you finally find a person that will actually listen to you. It took us 3 months to find out what exactly was going on.



I wouldn't worry too much about how he's going to do in the future, because of the fact they have found it at such an early age. They can actually work with your child sooner and it will be more beneficiary for him in the future. My doctors told me that by the time Lily starts actual school, she will be caught up with other kids her age because of all the help she is about to be getting. She will also have a better chance at being put into regular classes instead of special education classes in the future. Just remember that while it can be a little overwhelming at first, everything is going to be fine. Yes it will be hard for a while, but in the long run, it's the best thing you can do for your child. :D Glad to have been of help.

Rachel - posted on 12/12/2012

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Thank you sooo much for taking the time to read and reply to my post. Your daughter sounds really sweet. In my sons case, we actually visited with the pediatrician today, and she agrees with me that there are some neurological deficits. When she had him do the finger to nose test he actually could only do it with his right hand. So while its very subtle, he does have something going on. In a way I feel relieved that someone finally sees what I'm seeing, however i'm very worried about what the future holds for us. We have a visual perception test, and MRI and a meeting w/ a pediatric neurologist scheduled for next week. I'm thinking its a sensory processing disorder, but we will see. How long did it take you to finally get a diagnosis that fit?

Lacye - posted on 12/06/2012

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My daughter (3 years old) has recently been diagnosed with PDD-NOS. The main reason why they have the PDD-NOS is because while some kids might have the signs of autism, they don't have all of the symptoms. In my daughter's case, she can look you in the eye, she is a very friendly child with other people, but she has a speech delay (will only say a few words), she is very hyperactive (yes that is considered a symptom), and when she also has once certain thing she focuses on (in her case it's Blue's Clues).



If you are worried about your son having PDD-NOS, you might want to discuss that with your doctor. From the sounds of it to me, he's just a normal kid, but I'm not a professional. I can't tell you that for sure. In all honesty, if he did have it, he would have been showing signs way before now (we knew something was wrong with my daughter before she was 2 but at the time we didn't have a doctor that would listen). The muscle tone doesn't really have anything to do with Pervasive Developmental Disorder. That is more than likely something else.

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