ea/tef type c moms

Courtney - posted on 02/11/2014 ( 1 mom has responded )

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I'm a 22 year old first time mom who was told I had a wonderful healthy pregnancy. At 38 weeks 5days I delivered my 7lb 1oz bundle of joy in salisbury md on feb 4th 2014. I had to have a c section. Everything seemed fine. We went into recovery which is where things started getting difficult. My son was spitting up excessive amounts of mucus so after trying to get him to latch on he got whisked away to the nicu. Once I got settled into my room a doctor came in and broke the news of what he found on a xray. They diagnosed him with ea/tef type c. A few hours later he got flown to washington dc childrens medical center. Upon arrival the doctor called me and explained the procedure and also informed me he had a imperfirated anus. The next day (feb 5th) he had surgery to repair the tef and had part of his intestine out to make bowel moments until he got a little older to do a repair surgery. He currently is on the lowest settings for pain medication he was on a ventilator and was breathing on his own. It was mainly there for saftey reasons. Yesterday he found his vocals and Is now able to cry and sucks on a pacifier. Any other moms out there going through this or have gone through this. Anything I should expect or anything I need to ask to the doctors. This is all new to me and it is definitely a shock. Anyone have complications growning up and hitting milestones? They checked his heart and kidney and his kidneys are great. His heart might have a small heart murmur but they aren't concerned about it. Any advice or information will help. Thank you!

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Angela - posted on 08/14/2014

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Hey Courtney I'm going through the same thing now but my son was born prematurely he had 1 surgery already but they have not repaired his esophagus cord yet how is your baby doing how long was your baby nicu stay ???

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