Encopresis – How do I get my 12-year-old daughter on board with her treatment plan?

Denise - posted on 10/21/2014 ( 3 moms have responded )

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My 12-year-old daughter has been dealing with retentive encopresis for about 5 years now. She avoids going to the toilet at all. This results in soiling and the production of an amazing huge toilet-clogging log-like object every week. We have been trying for years to get her to talk about this, but she absolutely refuses to talk about this despite what her pedi, GI doc and psychologist tried to do or suggested we do to get her to talk about it. When we do talk about it, the response is ALWAYS "I don't know".

We have tried so many treatment plans over the years, specifically tailored to her, such as enemas, scheduled toilet sittings, she just kept holding it in. Right before school ended last year, her pedi and the GI doc laid out a clear treatment plan of laxatives, regular bathroom visits, and a rewards program. She did take the Miralax daily as directed, but the problem is every time after she took it, she kept holding it in, so the Miralax NEVER worked. I tried telling her "if you poop, I will buy you XYZ" (something she REALLY wants)" you can do XYZ only after you poop" and not letting her do things "you can't do XYZ until you poop" and XYZ would be something she LOVES to do. I wouldn't let her leave the toilet until she pooped, for hours no luck.

When school started, her pedi and GI doc came up with a new treatment plan involving fiber intake enemas. We TRIED to involve her, the response is again "I don't know." She refuses to take the enema and when she does she just holds it in. I asked her why she doesn't want to poop. Does it hurt? Does it scare you to poop? Does it feel good to hold it in? The answer is always "I don't know" and you can question her for hours and still get no answers. We have ruled out all physiological issues for not popping. We explained to her the digestive process, she knows why she needs to poop daily. 2 years ago we tried ucanpooptoo, didn't help. She does her own laundry.

Has anyone else dealt with this? Does anybody have suggestions to get her on board with the treatment plan?

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Sherry - posted on 05/14/2015

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Hi Denise,

My story parallels your story. My son will be ten on Saturday and he has been soiling for 4 years. I have tried all of the same things and to no avail. I am feeling very frustrated. I pray, I cry, I hug, I encourage, I motivate, but nothing. Did you try soiling solutions?

Suzi - posted on 11/18/2014

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All I can say is, "soiling solutions" (at encopresis.org website) makes a lot of sense to me. My "dd" has never actually been diagnosed with enco, or IBS, or anything - but because of her persistent bowel problems we're running a soiling-solutions-type regime in the house nowadays.
There's a forum about it at Yahoo which is especially good for advising encopretics older than primary-school age, including adult sufferers.

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