Tina - posted on 07/30/2012 ( no moms have responded yet )
Hi. I am posting on behalf of a friend of mine. Her son was born on July 19th and it's believed he has Epidermolysis Bullosa as well as Aplasia cutis congenita but the results of the biopsy won't be back for several weeks. As you can imagine, my friend and her husband are confused and trying to do everything they can for their little guy, but they're learning too.
I'm here to get support for them. Some friends and I have set up a FB page and a blog for them. If you know about these diseases and want to help them, please check out the pages. Or pass them on if you don't. I'm really heartbroken for them and just want to get them all the help I can. They would love the support either way!
The FB page is: https://www.facebook.com/LittleLiamsLambs
The blog is: http://littleliamslambs.blogspot.com/
The FB page gets more attention, but I understand that not everyone has facebook, which is why we set up the blog.